Sunday, March 30, 2014

Tips On Surviving A Car Trip With Gastroparesis (COPY)

COPY from www.MelissaGPfight.com


Tips On Surviving A Car Trip With Gastroparesis



Each person with gastroparesis can have different symptoms, will react to medications differently and not all natural remedies will work.  For these “Tips For Traveling With Gastroparesis” will be based on what I do.   Keep in mind that I do not have a feeding tube and not too many other medical issues that I need to worry about when traveling.  This list is simply to give you an idea of what a person with a chronic illness must take into consideration when planning a trip.


Around Town Outing

No matter where I go, I always have a small bag in my car with the following items:
  • LifeSaver Mints – helps with nausea (click HERE for other nausea remedies).
  • Protein Bars – the Balance Bar brand seems to be best on my stomach.  I eat 1 when I start to feel dizzy (lack of protein is my trigger).
  • Single serve size of peanut butter – again for the protein to ward off the dizzy spell.
  • Vomit Bag – just in case
  • Always know where you are going, so that you know where restrooms are along your route.
  • A change of clothes – just in case
  • A liquid item – for me I make a cup of hot mint tea and put it in my travel cup.  Also have bottled water.
  • Medications – nausea, headache, allergies and whatever else I can think of.
  • End of a roll of toilet paper or tissues – those of you that have gone into a restroom with no TP will understand!
  • Know which restaurants have ‘food’ that you can consume, in case your with friends or family that want to stop for a bite to eat.  Most restaurants have their menu online, so it is easy for us to glance at and know if we can eat there or not.  Keep a list with you or in your phone.

Planning A Trip

Even if it is going to be a short trip (or overnight) try to give yourself plenty of time to plan, prepare (mentally and physically) and pack.   The short trips can be just as hard on us as a long trip.   If by chance there is a time change involved, that can even be harder on our system to adjust.
  • Keep in mind your health schedule when you plan a trip.  Is there a certain season that you feel better in?  A certain time of the month or week that you typically feel better?
  • If your trip is for fun, then consider the weather of where you want to travel.  Will it be cold during the time you want to go?  If so, how does your body do in the colder weather?  For a lot of us with Gastroparesis either very hot or very cold can easily put us into a flare mode.
Now that you have found where you want to go and when you want to go, now it is time to look how you will get there.
  • Car – typically the best option for most of us, depending on how far you are going.  This method allows you to stop when you want along the way (rest stops for example) and you can take the travel at the pace that is best for you.  Another plus is that you avoid all the TSA hassle (especially if you are feeding tube dependent, take insulin, have a pacer for your stomach or other medical devise.
  • Train/Bus/Boat – I have not traveled by these means, but can only assume that there would be pros and cons to these as well.
  • Air – My least favorite method of travel mostly due to the heightened nausea I experience and dizziness.   I need to plan accordingly and made sure I have a day or two to recover when I arrive, if this is how I travel.
You have picked how you want to arrive to your destination and hopefully have allowed enough time for your body to recover when you get there.  Now it’s time for our suggestions on what to pack and other tips based on travel by car and plane.

Travel By Car

  •  Everything in the “Around Town Outing” goes into our magic bag of goodies.
  • Recently I have found that SeaBands or Pressure Bands work okay if applied 20 min before you get into the car and during the entire trip.  It’s not a cure or 100% fix, but in combination with other nausea remedies, they do seem to help.   They can be found online and most local drug stores will carry them.
  • My other favorite is Nauzene; which is an all natural nausea over-the-counter pill.  This has high amounts of Ginger, so it would not be recommended if you have GERD (acid reflux).  As soon as my tummy has time to digest the pill, it is working for me.  I never thought I would find this small miracle.  Every single other OTC or Rx nausea medication has not worked or had too many side effects.  My suggestion is to keep trying until you find something that works for you.
  • Music!  It is a great distraction, just lay your head back, close your eyes and focus on the music.  This helps when the pain or nausea wave hits.   If you are playing the music on a phone or other devise, make sure you have batteries or a charger.
  • A pillow and/or blanket.  I don’t know about you, but my body temp really seems to go up and down quickly when I am in a car.   Also these are great to have on hand so that you can pull them into your stomach when it is cramping or you are in pain.   The light self-hug seems to help me.
  • I probably don’t have to tell you, but here it goes anyway:  wear shoes you can kick off and loose clothes.  Heck if you are just headed to a hotel, PJs are a good choice.  My go-to is yoga pants and a loose shirt.
  • Heat is always my friend to help reduce pain and nausea, so don’t be afraid to use those Icy Hot Packs (band of your choice) and put one on your side pain or tummy area.  When I can’t have my heat pad, this is the next best thing.   But be sure to pack it!
  • Cooler filled with ice and anything that you are able to ‘eat’ or drink.   Take small amount of anything that you typically snack on during the day.  This will give you a wide selection to choose from and you can pick what you think will be best for your system that day.   NOTE:  after being Dx with GP and needed to travel by car, I thought it was best to not eat.  Eating always made me feel worse, so I thought not eating was my answer.  Turns out that my theory was not very good.  With picking the right food choice, making sure you eat a little less than ‘normal’, really helped me keep the dizzy spells away, headaches and I actually felt better that next day.  The choice is yours!
  • Since you don’t have to deal with weight limits, luggage size or any of that stuff, this is when I like to pack a few extra amount of clothing.  Anything that I typically can wear in public on a bloated day gets packed as well as maybe 1 or 2 of those favorite pieces I have, which can only be worn on a non-bloated day.  For the ladies:  safety pins are a great option if you choose to purchase a skirt that fits the bloated day, so you can ‘keep it on’ when that belly goes down!   Empire waist dresses seem to be a perfect option too.
  • As mentioned before, be sure to know where you are headed to so that you can find some places that you would be able to tolerate food at.
  • Even if you are in a hurry and just want to get there since you may not be feeling very good, I find it is better for me to get out at a rest stop or two.  If you don’t want to walk around (or need the bathroom), then just open the door or window.  The fresh air (if the temp is not too hot or cold out) does our body good.

Picking A Hotel

You may think a room is a room and you just want to book the least expensive option.  However, think about what you NEED and how long you will be there.  Here are some suggestions:
  • A mini fridge is a wonderful thing!  You can try to keep your cooler filled with ice all the time, but that is a pain and you could easily spoil the food in there and none of us want to deal with that, plus gastroparesis.   When I was doing smoothies for my main nutrition, a fridge was a must needed item.  Now it is a place to house the items that my diet requires and gives me the ability to eat when I need.
  • A microwave is a good thing to have as well.   Besides to heat the food you have or make tea, you can heat up your own rice packs if you don’t have a heating pad.  Check out all the ideas that are on Pinterest to make your own heat pad.   Add this to your list to pack too.
  • A coffee pot can be used for more than coffee.  I run just water through it so that I can have my mint or ginger tea, cup of noodle soup or hot cocoa.  With that said, I pack a mug when I travel too.  Those hotel cups are almost worthless.
  • Room Service Please – on those days that I am not able to leave the room, having room service (some menus can be found on the hotel’s web site) is a luxury to me.   And I was not talking about not leaving the room because I am on a honeymoon!!
  • Free Breakfast – if you can tolerate gluten, then most of these continental breakfasts don’t add that much cost to the room verses how much your family would pay if they ate out.  You can even find some that offer muffins, waffles and pancakes (in moderation, can be okay with GP — this is always different for each person).
If you are driving and have the space in the car, you could always bring along: blender, microwave, personal size fridge and a box of dry food that you can tolerate.  We usually get rooms that have a small kitchenette in them (depending on our length of stay), so that I will be able to have some food with the family.  It also saves a lot of money to not got out.  Yet the down side is, if you didn’t bring a maid or cook, you may not want to spend the energy doing this … it is a vacation after all.

We hope you walked away with a few idea and keep these main points in mind:  plan around your expected health flares, take anything that you would use in a given day/week, do your homework to look for places you can eat at along your route, map out potential bathrooms, have all the conveniences you depend on at home in your hotel and be sure to stop along the way for fresh air.


Here are a couple great resources as well:

Tuesday, March 18, 2014

Coupon Code For Shirts At GPfight.bigcartel.com

Copy from MelissaGPfight.com


Shirts at www.GPfight.bigcartel.com
Here is a pic of all 5 shirt designs that are currently available at http://www.GPfight.bigcartel.com From March 17 – 28, 2014 use Coupon Code PATTY05 to receive $5 off any shirt purchase. This brings the shirts down to $10 each (plus shipping USA).   The lowest we have ever had.

The store is offering this great deal to sell off the limited stock they have left in each shirt design, to be able to bring in new designs. Coupon Code is only valid for the stock on hand, so you better hurry!

Birthday 2014

Copy from MelissaGPfight.com

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My birthday was on Feb 13th, but I wanted to extend a big hug to all of you for the birthday wishes.  Seemed like something was always getting in the way of me doing this post!  Better late than never?!

Anyway, for those of you that follow me on Facebook, I had a little over 100 Happy Birthday Messages, some with pictures and a few with videos!  I tried my best to respond to each and every one of you.

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I never dreamed that I would receive so many, you almost had me in tears.   Several of you sent me cards in the mail which were greatly appreciated as well.  Even one was of my own creation that I sell on my store http://www.GPfight.bigcartel.com (a 12 pack is less than $1 per card).Image

So a belated round of thanks and hugs for thinking of me.  I plan to catch up on my blogging very soon!  But first a couple days this week I will be out of town, then a week home before I go on vacation for 2 weeks.   I will be blogging about that and taking some pics when I am there.  WE can’t have too much GP Awareness!!

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Thank you 8,000 times

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We’ve reached 8,000 views!  It has been a long time since I have posted and I hope to get back to around May.  Your continued dedication and spreading the blogs that I write to others is greatly appreciated.  Also welcome are the wonderful comments and stories you write to us.  We love to know that you have walked away from an article that we write with having learned a little something new.  That is what we strive for and aim to help not only the Gastroparesis Community, but an person that can benefit from what we do here.  Thank you again!  We hope to not keep you waiting too long for a new post from us.

Sincerely,
The Melissa GP Fight Team

Be sure to visit our store at: http://www.GPfight.bigcartel.com too :)

Why is GREEN the color to represent Gastroparesis / DTP?

BELOW IS A COPY FROM A FACEBOOK POST FROM G-PACT.  WE WOULD HAVE SIMPLY PUT UP A LINK, BUT SOME OF YOU DO NOT HAVE FACEBOOK ACCOUNTS.  THIS QUESTION IS ASKED A LOT AND WE FELT IT WAS BEST TO COPY THE ENTIRE POST.

Why Green and Yellow?

February 9, 2013 at 11:14pm
Most people think that green and yellow became the colors for DTP because green is associated with nausea, vomit, bile, and a greenish appearance when sick. Actually, G-PACT places a stronger meaning behind the colors. We gave them a lot of consideration when we selected them to be the official colors for our use to represent gastroparesis. They represent how we want patients to see the future and what we are all trying to accomplish with hope, strength and growth towards better treatment options. We have seen a lot of growth in this field since our founding in August of 2001, so the green is appropriate. Why?

Green indicates growth. We are growing towards a cure and awareness and research is growing. It’s a color of hope. When things start turning green outside it indicates the end of the cold, long, dark days of winter. The first sign of green plants and grass indicates we are coming out of a time if darkness and coldness and entering a phase of growth and brightness. It is a color that shows brighter and beautiful days are ahead. There is something really encouraging when you see that first blade of green grass or green leaf peaking through after months of brown fields, trees, and no growth.

G-PACT is a grassroots organization meaning that we started with a small handful of patients who were coming out of a period where there was very little knowledge and very little hope towards any kind of understanding or a cure. We knew something needed to be done to provide services to patients to get through the tough times now, and provide hope as we also fight for awareness and research and help bring about greater understanding into this condition. Our initial motto was “Striving towards brighter days of treatment, knowledge, and a cure.” We have grown into a much larger scale, now making an international impact and have provided hope to so many as they try to cope until we do find the cure.

Yellow was also an important color for us.  Our logo is a sun to indicate hope and a brighter future ahead. The sun is a crucial factor that helps the plants grow. It brightens the days and brings with it the nutrients, strength, and oxygen needed to supply the plants with what they need to be able to grow and thrive.

When you wear green, make green things, or do anything with green or yellow for DTP awareness, you are helping things grow and bringing a brighter future and hope to all of us who are suffering from any or all forms of Digestive Tract Paralysis. We are pleased people like the colors we selected and have adopted them into the things they do for DTP awareness. And now you know why! Thanks for helping us see growth in awareness and research by supporting us!

IF G-PACT.ORG WANTS US TO REMOVE THIS POST, WE WILL ACCOMODATE ACCORDINGLY.