Friday, December 27, 2013

We've reached 7,000 people!

We've reached 7,000 people!

I have been so busy with the store (GPfight.bigcartel.com), working a few days a week, all the holiday stuff and sadly not feeling too good, that I have not had time to do the over-haul I wanted on here!

There are several 'fighters' that need to be added to the tab on top and a few tabs that need to be modified, among other things.

So thank you, for your continued support while I have been away. Now that the majority of major holidays are past us, it is my hope to be able to get more done here!

Wishing you all a wonderful 2014!!

Friday, December 20, 2013

Who Won The 2013 "Best Inspirational Tattoo"?

As some of you may know, I created a Facebook Page called "Tats For Gastroparesis & Awareness".   There were so many people posting pictures of their new tattoos that I felt a page was missing to capture all of their great artwork!   There have been over 200 likes on the page and 26 people entered.  Amazing!   I never thought the page would take off as well as it has in the community and wanted to thank you all.  If you are on Facebook you can find the page here: www.facebook.com/TatsForGastroparesis

The voting ended at 11pm Eastern Time on December 20, 2013 with a very nice zebra design sent in by Jodie's Journey.  Here is a link to a page that tells their great story.  It also happens to be their fundraising page:  http://www.justgiving.com/jodiesjourney

Again, thank you all for participating in the event.  You all should be so proud of your tattoo no matter who 'won'.  Each tat tells a unique story and we are thankful that you shared them with us!   This also gives others a chance to see all the designs and help them create something for them.

Some of you may not have access to Facebook, so I will post the winning picture below!

[caption id="" align="aligncenter" width="341"]Image Jodie's Journey Tattoo -- winner at facebook.com/tatsforgastroparesis
http://www.justgiving.com/jodiesjourney[/caption]

GP Fight Store - Updated

We are happy to announce that the "GP Fight" store has been stocked with more items and is up and running for business!  

Check it out at:  www.GPfight.bigcartel.com

There is a little bit of everything for everyone.  Following is a small sample of what is available:

  • Gastroparesis (GP) Awareness Ribbon Cling for your car or truck
  • Buttons & Keychains (4 styles to choose from)
  • Shirts (4 styles to choose from)
  • Pens
  • Greeting Cards

Item costs are as low as we can posiably make them.  This was our main goal in creating this store for you!  To make sure that you would be able to afford something to spread GP Awareness.   And we know how hard it is to wait for something to be mailed to you when you place an on-line order!  For that reason we work hard to get your orders assembled and shipped within 1 - 3 business days.  

If there is something that you do not see or we don't have enough in stock to fill your wish, e-mail us via our store link and we will see what we can do for you!

[caption id="" align="aligncenter" width="292"]Image Items for sale at: www.GPfight.bigcartel.com[/caption]

 

 

 

 

 

Thursday, November 28, 2013

Our 2013 Thanksgiving (personal story)

ImageThis year it is just the 2 of us and no family in the town we moved to.  First thanksgiving that I have not been with my family and it felt a little odd.  Yet, I didn't miss trying to get out of my husband's family's dinner.  Two in one day was always too much and now with my gastroparesis, there is no way I could do that.

So we decided that I would make a turkey breast with some mashed potatoes and stuffing (for him).  Then my loving husband of now 14 years together (25th was our anniversary) added the cranberry chutney I do -to the list.  Okay, I can freeze the rest, if needed (since I can't eat it).  Then the list grew some more to deviled eggs.  Mmmm, okay.  I could eat those later in the week.  Lastly, apparently we needed pumpkin pie. 

Now, my head is spinning and I worry that my body will not hold out to do it all.  I gave myself the much needed pep talk, put my big girl panties on and got to work on my day-by-day list of what I could do when.   All finished with that, I looked it over and was very pleased!  I should still have time to work on a project at home I have neglected for over a week!

Let's stop the happy dance there!  Why?  Well, hubby comes home from work and tells me that he wants to take his team dinner on thanksgiving.  Yes, the place he works for is open on that day (grr... pet peeve I have on that subject).  Okay.  So he looks over the store ads and finds a good deli deal where a meal for 4 people is $10 with all the fixings.  Great!   I can make an extra batch of pies and he can take those to top off the meal.  Since the side items are only a total of 2 lbs, I offer to just cook up the bag of potatoes I got at the store (I never made myself the potato soup I wanted to and they will be going bad soon) to help out.

The next few days I keep asking if he called the order in.  Knowing the deli, we need to move fast or they will not have the food.  By Monday he still had not done it.  Then Tuesday he placed the call, just to find out that there are no turkeys available.  They offered him chicken for the same deal.  For some odd reason our store was never shipped the turkey.  He gets 2 roasted chickens for the team of 20 - 30 people.   Since one roasted chicken will serve 2 - 4 people... I put the offer out there that I could cook a turkey for them, if I could find one.  <Shoot foot now>

Tuesday night I run to the store to find a turkey breast.  Going down the isle, there were 2 other people looking for birds too.  I hurry, there are only 3 left.  None of which exceed 8 lbs.  Can't be picky at this point.  I grab 2 and head to the check out.  Get home and give it the much needed bath in the sink and cross my fingers it will thaw for the morning when I need to cook it.  He needed the thanksgiving meal for 10am on Thursday, so Wed I had to cook it all.

I think I made it to bed about 2am on Tue night (wed morning) making 3 batches of cranberry sauce, 3 batches of pumpkin bars (no time for pies) and making our stuffing.   Wed I was up a little early and got started on the turkey, made 8 lbs of mashed potatoes, made our deviled eggs and he made the gravy.   When it was all done, I packaged it all up, did clean up and hit the bed!  

Thursday came too soon.  I was up at 8am to reheat the mashed potatoes and turkey.  Put the pumpkin bars in tins to go and help load the car.  I know my husband would have done all that without me, but I was awake after he got out of bed, so why not.  After that I fell asleep a little too long and our turkey didn't get put in the oven on time.  I really had to push myself to go do it, or I was just going to continue to sleep.  Around 2pm it went into the oven.  The dressing and corn just needed to go in after the turkey was done.  Then we would be set, dinner would be done and it would all be over!   I think I was a little too quick to rush it.   As I proudly told hubby dinner was done and he needed to come do the gravy and cut the turkey I realized I didn't make us mashed potatoes.  The instant kind in the pantry came to the rescue.  I was upset that I forgot something for our dinner.  It's my guess the 8 lbs I did for the other people got me confused.  The good sport he is, he didn't care (too much), we all know the real ones are better!   Then, during clean up I found our cranberry chutney and deviled eggs in the fridge.  Really?!   I can't feel too bad, as he didn't realize they were missing either.

Next year I will certainly do things different!

At least my tummy is hanging in there.  It's not the greatest and certainly not the worst.  And I know that I was the one that put the extra pressure on myself to try to do everything.  Days like this I really do miss how much I could accomplish pre-GP,   I also know that I need to enforce my limits by saying 'no', since I already know most of my limits.  That is a part of me that will be very hard and I will slowly work on.  I had to with the new job I have now and after breaking down in tears in front of my new boss, I know my tummy is thankful for less hours.  Realizing it and saying it out loud are two very different things.

Knowing that any one of those people may not have had a hot dinner to go home to, and we helped provide that for them, made me feel good.   That is what THANKSGIVING is all about.  Giving Thanks.  And it was my way to say thank you to them and in turn they told my husband to tell me what a great job I did and how much they appreciated it.   That made the GP suffering well worth it.  

Food wise?  I did just fine with a few bites of turkey, fake potatoes and a small amount of dressing.  Sipped my mint tea and snuggled in for a movie.  What could be better?  

Hope you all had a relaxing Thanksgiving as well as a Good Tummy Day!

Thanksgiving With Chronic Illness

 

give thanks

It seems that much of the holiday gatherings revolve around food.  Thanksgiving is now an endless bounty of food, rather than what is was intended "Giving Thanks".  To those of us with gastroparesis, our holiday invite is torture, not joy.   Being in a room filled of food as far as you eye can see... counters covered with it, stove top, oven, table, end tables, you turn around and the sweet shop has taken over the top of the dryer and washer, looking outside you see the back yard fryer and BBQ going.  There is no escape!   People walking around eating and drinking.  Asking you a hundred and one times if you need anything.  You reply kindly, "No, I'm fine.  Thank you".  By the last time they ask, you don't want to be rude, so what do you do?  Give into temptation, knowing you will be ill, but hope you get home in time.  Or, hurt their feelings?  You could try to educate them, but lets face it, that may be like talking to a brick wall.  Or worse yet, they are the part of the family that does not believe you are sick, rather they think you are anorexic.

Any person with a chronic illness truly understands that Thanksgiving is about THANKS and not food.  But to the average person it's about food and the plan of attack for shopping the next day.  Which would be reason #2 that we don't want to be in a room full of these people.  Chances are slip that we will not be going out the next day or at 2am to score that great deal.  If we make one false move with our food, drink or time (see The Spoon Theory) we will be headed for a spiral downhill quickly.   Plus, we all know about the anxiety of going out.  Doesn't matter if it is to the bank or doctor, we worry of we will be okay for the car ride, if we will get sick on the way.  And I 'm sure you all know where the restrooms are for each place that you go to!

For us, our THANKS are simple:  we had money to pay for our medication, we got out of bed today, we got dressed today, we were able to keep food down, that our family supports and understands us.  Our thanks may appear humble or small, but our way of life is much different than most people realize.   Being thankful for a promotion at work that landed you a shiny new red car, will probably not be us, since most of us don't/can't work.   We are thankful when we can afford to make car repairs, if we have a car.  I really wish that people could look at the whole picture of their life and not take for granted the little things their life.  Be thankful for what you have and not focus on what you don't have.  Life is not a competition of stuff.

So, on your day of 'thanks' take a moment to figure out what you are truly thankful for.   For me, it's a loving, caring, understanding husband and family.

Friday, November 22, 2013

A bad day - but not GP related (personal story)

What a day?!


I typically roll out of bed any where between 10:30 am and 2pm.  Just depends on my tummy.   Well, Nov 21st was a strange day all around!  I knew something was weird when my body decided it wanted to get up at 8am.  I laid there for about 20 minutes thinking if I really needed to go back to sleep or not.   Which, is my normal morning self-diagnosis from head to toe.   Everything checked off the list fine... even low morning nausea.  WOW, did I really just type that?!

My feet hit the floor at 8:30am and I walked to the kitchen to make tea.  This is going to be a great day.  For once I am out of bed at a decent time, plenty of day light to do all that I want on my list.  I sat in the chair cozy with a blanket and opened my phone to apps to see what I missed.  Say what?!  Does that temp really say -20 degrees outside?  I wondered over to the computer to take a better look.  Maybe it was just the typical blurry vision I get in the mornings, but holding the phone a few inches from my face, it really did look like that is what it said.  CRAP!  Each weather place I went to on the web said close to the same thing.  Brrr!

Now I began to worry about my husband.  He had already left about 6am to help unload a truck for a store he works for.  And yes, the truck will be outside and not inside a bay.   My mind rushed to think of what we have unpacked that maybe I could use to get some hot cocoa or coffee to the workers.  I didn't come up with much, so as the time ticked by, I figured well, they are probably done or frozen -so it doesn't matter.  Poor hubby!  This time the thought probably didn't count for much (haha).

Since its that F'n cold out and my car lately has given me crap about starting (just a groan before going -on one key turn), I will wait for a little bit.   Grabbing a pen and pad, I began to list off what I wanted to get done today and the places I had to go.  YES, I really did have to go out in that.   Watched a couple DVR shows, had a small bite to eat and started to get ready to go outside.  It was now 0 out!

While getting dressed, I noticed it was much colder in that part of the place than the rest.  So, I dug out a space heater and set it up in our room.  At least something got done, so I better put that on my list, so I can cross it off.   (Have you ever done that?)

By now it was past the time my husband would typically come home for lunch.  Since I was going to go out, I sent him a text to tell him I made him soup and it was on the stove if he was coming home.   Yes, I shut the burner off before I would go out.

Bundled in snow gear that reminded me of being a child to go out to play, I made my way to the car so it could warm up (haha).  This time she didn't even want to groan for me.  I tried a few times and still nothing but the hundred and one accessories that come on.  And then on the last try the navigation decided to no longer work.  CRAP Again!

I shut the car door and waddled my way back inside.  Planted my butt by the heater and send another text to my husband.  I hardly send him 1 a week and now he gets 2 in one day!   Once I had some feeling back in my hands, I was no longer motivated to do the much needed work for my on-line store.  Instead, I knew a few tv shows that I like were going to be on.   Yep, I sat on the couch with another cup of hot tea, grabbed the remote and my blanket.  Flipped the tv on and the cable was out!  REALLY?  Is this going to happen to me too today?!   I tried a few more channels and nothing.   The shows I set to record, are not recording anything.   Next, I tried the internet and it was fine.  So, what the heck (same company and same line into the house).

Prior to this I was sending e-mails back and forth with the cable company regarding our messed up bill.  We were going to also step down on the number of channels, so I tried even the basic channels thinking she messed up.  Nope.  Nothing.  I shot an email back telling her it was out (in great detail -haha).

Just then, my husband pulls up in his truck.  He tries to jump start my car and apparently my car was not going to have any thing to do with that.  She refused to start, still.   He came in to have some soup and told me that we need to get a battery for the car.  UGG!  In this small town we have 2 options.   My car can only get serviced by licensed shops that have the proper equipment to reset the codes.   It's one of those that tells you the specific service it needs and that display will not go away unless a specific licensed shop does it.   The display is so vividly orange and it will not go away!   Since we moved to this little town in the middle of nowhere the closest dealership for my car is 2 states away in either direction.   So a battery?  Ha!

For giggles he wanted to go during his lunch hour and look for one.   The first pace said no when he started to ask.  We left.  The last place in town (good ol' NAPA) could not find it in their system.   Further digging and calling around, they don't stoc1k them.   The suggested a local engine repair shop.   Umm, okay.  We went.  And they had one!  For $150!!  Really?!  Could you see us coming a mile a way - or what?   Sadly, we took it.   We would spend at least that to get one shipped in (if possible) and more than that to travel.

Went back home and it's now in the single digits with a good strong wind.  My beloved husband (anniversary on the 25th) stood out there to put the new battery in, so I could do my errands.   Yes, he is a keeper!    He finished up, I gave him a hot cup of coffee and he was on his way.   The car was running, so I got bundled up to go back out.    Read my cable gal's email and sent off a response, since it was still not working.   Made it to all of the destinations with and without shutting off the car.

Finally got home, put the stuff away and realized I lost my day in doing the stupid car stuff.  Now it's close to time to make dinner for my husband I had not done anything with the store and new products that I wanted.  Heck, I wasn't even on facebook (hope you didn't fall out of your chair).  Decided I was in for the night and wanted to get changed in comfy clothes.   Walked into the bedroom and the heater was off.  What the heck?!   I thought I left it on.  Or was it one of those lapse in memory moments?  I checked the switch -yes, it was on.  I wiggled the plug.   All was good.  I flipped on the light and nothing.  Really?!   Something else to add to my day?  I messed around in a few other rooms.  All was okay.  So, I found the breaker box (thank goodness our rental has one) and a circuit was tripped.   I fixed that and the heater came on.  Happy dance!

Sat down to my email and she had told me she was sending a tech out to help.  Dang!  I was out.  I'm not sure if he came.  I looked at my phone and missed a call.  It was the tech (of course) and he was out.  Noted that we were not home, so please let him know if he fixed it from outside when he was there.  I checked.  YIPPEE!  I have cable again!  I called to tell him and got some wack job to give a message to.   About 30min later the tech calls again and come to find out he didn't get my message.  I could have guessed.   I thanked him a 100 times (it took us 4 weeks to get cable installed -so a same day fix was not expected).

With all of this going on, I forgot about my gastroparesis for a little bit an felt 'normal'.   The GP did not flare in any way and I am honestly thankful and this was a very stressful day.   Every issue that had gone wrong was fixed.   My list of things to do were not all crossed off, but in due time they will.   Now I am at work for the next few nights and know that what I need to get done will not happen until may Tuesday.   Oh well.  From what I have learned in the past few years is to never count on everything going just they way you plan.  The detour can be just as fun... if you let it!

Happy Tummy Day to you all :)

Saturday, November 16, 2013

ATTENTION ONLINE SHOPPERS: Shop AND have a % of your sale go to a charity (no $ from you)....

Image

It's that time of year again.  Where the stores are flooded with people, trying to score that great deal.  It's cold, possibly snowing out (at least up in the North it is), there is no place to park, transit systems are full, commute time takes forever.... once you get there, forget a shopping cart down the isles, YOU can't even get down the isles.  Kids yelling.  Then all of a sudden it feels like you are in a tropical climate, needing to strip down to your undies.  Or maybe that is just how I feel trying to do this WAY over-rated holiday shopping crap.

We are sick.  Do we really want to waist our spoons on going to the mall just to take hours looking for that 'perfect' gift for our loved one?  Then on that big day, it is unwrapped within 20 seconds, looked at and tossed to the side.  Maybe it was not what he/she wanted, wrong size, wrong color, this list goes on and on -- especially if you have a teenager!

The last 2 holidays I found myself not wanting to go out in that hustle and bustle.  A small part of me did miss all the fun going shopping with my mom.  Taking a 'break' to have a cup of coffee and pastry.  But who is kidding who?   My body wants nothing to do with either of those items.  All that sparkle that is built up in the holiday songs and movies looks great, but when I put my shoes on and go out in it... that is a whole different world.   I would rather make my cherished memory on a day with my mother, when I am feeing good and there aren't ten thousand people all clambering for that same 'on sale' item.   Which honestly, didn't I see that a few months ago for a cheaper price?

Now that the scene is set, you can probably tell that I now do a lot of online shopping.  So, I have experience in what I am about to tell you.  There are 3 (in my experience) great web-sites to go that will donate a certain percent of your purchase to a charity that YOU choose.  Here are the facts based on what has happened with me:

  • No, the prices are not increased at all for the company to donate money to your chosen charity.  I have done many product/store comparisons with and without the sites I am going to tell you about and never have the prices been different.

  • The whole process of purchase, mail time, etc is the same.   Actually, I find the 1 place I am going to tell you about, even better than the regular website as you can track your history of purchases too.

  • No money comes out of your pocket for the charity!  The company that you order from is the one that sends money to the charity.  Some do it on a monthly basis.  Others have different contracts (between the store and charity).

  • You can choose 1 charity, do your purchase and next time you can change to a different charity or keep the same one (default option).


OKAY ON TO WHAT YOU WANTED TO KNOW....

1)  http://www.goodsearch.com/ -- is my FAVORITE.  They have a history area of all your purchases.  They have COUPON CODES all ready for you, you choose what one you want.  No hunting on the internet to find/try them.  A tool bar can be installed into the browser you typically use.  I did and NO virus!  Whoo hoo.  Simply search the internet with their search site and automatically if a store you go to will donate, on the tool bar it will show up with the percent it will donate and the coupon codes.  You have to use the link within GoodSearch to actually have the donation work.  This site has also expanded to dinning out.  If you set up your card with them, and use it at the restaurant they have on their list, the donation will happen (provided you use the card you set up on the site).  I have not tried that part yet, as there are no restaurants in my small town that does that.

2)  http://givingworks.ebay.com/ --- do you shop at E-BAY?  If so, be sure to enter into E-bay with the "Giving Works" link, set up who you want as your charity and start shopping!   If you sell on E-bay, you can have a percent of your sale go to the charity too.

3)  http://smile.amazon.com/ -- Amazon does the same thing as E-bay.  Again you must enter into Amazon under the "Smile Amazon" site and set up your charity.

As a reminder if you do not go into Amazon or E-bay via the links above, then when you buy something, your charity will not get credit.  Be sure to have these as your bookmarks and not the links you normally use.

MAY YOUR HOLIDAYS BE BRIGHT AND YOUR CHARITY OF CHOICE THANKFUL :) 

Tuesday, November 12, 2013

The New GP Fight STORE

GP Fight - Store


We have started a Gastroparesis Awareness Store with items that are easy on the wallet.  Price is our biggest driving factor, to keep the prices low and affordable for the entire GP Community.  We know that you are tight on funds after paying for your medications and doctor visits.  For us, the main goal is GASTROPARESIS AWARENESS... not to line our pocket.  

To keep prices low, most items are hand made, with love, by an individual (MelissaGPFight) who has gastroparesis and is dedicated to spending every last minute of her day advocating and spreading GP Awareness.  She fights for those that can not, so that one day ALL of us will have a better quality of life. 

There are more items on their way to us -currently being printed as we write this blog.  Shirts and key chains will be here soon.   Our next step is to order bags.  Small for those pesky little items you need to take with you (gauze, syringes, tape, etc) with a zipper.

A few other product ideas are in the works currently.  But, let us know if you have more product ideas.  New images and sayings will also be coming!

Visit the store at:  GPfight.bigcartel.com
Visit the Facebook Page at: facebook.com/MelissasGpFight
Visit the original blog post at:  http://melissagpfight.com/2013/11/09/gastroparesis-awareness-store/

Thank you!

A Thank You to the 6,500 Visitors and update on what I have been doing.

A Thank You to the 6,500 Visitors and update on what I have been doing.

I didn't expect to see so many more visitors that showed up to this page in my absence. So a BIG "Thank You" for your continued support.

As you may know, we moved. That was not an easy move for us to make, which required a U-Haul, pickup truck and two car trailers driving for 2 days to our new home. I have yet to have time to blog about that. But it is on my ever growing list!

In the 2 months we have been here, I have picked up a part time job. Bit off more than my GP would allow me to work, so I had to cut back on hours. The place I work for KNEW about Gastroparesis, so I didn't have to go through the whole spiel. The even better part was they understood I didn't know what my limits (for hours) would be to maintain a good GP Lifestyle for me. We tackled it one day at a time and after all this time, I think we found what works for me.

If trying to work again wasn't enough, along with learning a new town, getting everything under the sun changed address and new state wise, I decided to open up an on-line store with items I craft. So add store sales and crafting to my weekly chore list as well.

Sadly, my blog has taken a back burner and I am very sorry. The good new is, you can find me on Facebook where I have my Profile and 2 Pages. The one page is "Tats For Gastroparesis and Inspiration". Which I am currently in the process of holding a contest for the 'Best Inspirational Tattoo". The other page is mostly to link my store and post the new products as they come in, with occasional jokes or inspirational pics. My FB Profile (mostly open to the public) is for the medical updates, supplement suggestions, coupons, jokes and personal stories, etc. Click on the CONTACT INFO TAB to find links.

I am also helping out G-PACT with their Pinterest Page and a few other individuals on Facebook for Gastroparesis Awareness and Moderator for a few groups.

Then on the days off that my husband has, we travel around to explore near by towns and just spend time together.

So, as you can see with all of this going on, I have fallen a little short on time to Blog. I really do miss it and I must get back into it!

Stay tuned for more and again THANK YOU for your continued support. I do receive a lot of heart felt messages and you are the reason I continue to do what I do!

Friday, November 8, 2013

Gastroparesis Awareness Store

GP Fight - Store


 

This store just launched a few weeks ago and is in the process of adding items.   In the next few weeks the t-shirts will be stocked and key chains will be in.   Several more items are in the design process!

The best part of the store is that the goal is to keep the prices as LOW as possible so that everybody can pick up a little something to spread Gastroparesis Awareness in their own way.   Items are shipped within 1 - 3 business days and most orders come with a tracking number.

If you want to receive updates when new items are added, be sure to "Like" us on Facebook and follow along at:

https://www.facebook.com/MelissasGpFight

This is a perfect time to send the link to your friends and family if they are looking for gift ideas.   Here is a direct link to the store:

http://gpfight.bigcartel.com

 

  Tummy_Button_Ad


 

Thursday, October 3, 2013

My Nausea Science Experiment -Personal Story

Check out my NEW blog on MelissaGPfight.com. 

It's about how I am going to adjust my sleep pattern to see if I can reduce nausea.  Medications don't work.  So, why not?!

http://melissagpfight.com/2013/10/03/my-nausea-science-experiment-personal-story/

Wishing you all a great day!!

Tuesday, September 10, 2013

Give A Way Contest G-Tube pads

I have partnered with Patchwork Peddler to create a wonderful give a way of a four pack of g-tube pads, they make.

Contest Ends September 14, 2013, Saturday @ 8:00pm (Pacific)

Click The Following Link For Details On How To Enter:

Good Luck!!

Monday, July 29, 2013

A Note To My Readers

Note To My Readers



The rest of this July 27, 2013 week I will be finishing up packing and the following week (exact move date unknown) my family will be moving out of state.  The final destination will take us 2 days to reach, so I will not be on-line.   Once we arrive to our destination, it is unknown when I will have internet service. 
Image
At this time my husband will be driving the rental truck with a car in tow and I will drive our other personal vehicle (with or without pulling another vehicle).   My main concern is trying to stay hydrated in the hot summer weather and my nutrition levels up.  Once we get to the destination, we have limited time to unload and return the equipment.  I can only pray my body holds out!

But I will certainly fill you in on my adventures and pass along any tips with trying to move while you have GP.  Where we are now is on the 3rd floor of an apartment building.  Moving to this location from our house we sold, was no easy task.  I hope I have learned a little from that experience to make the move out better.

Cheers to a new chapter of my life and a great experience for me to blog about later!

Thursday, July 25, 2013

3,000 Views ... Thank you!

3,000 Views ... Thank you!

In less than 3 full months there have been over 3,000 viewers reaching 30 countries. I want to tell you all THANK YOU for your continued support.

I have received many messages from you and am happy to hear that you like what you read and have walked away with some tips.

It's so nice to see that some of you share the blog to help others as well. Without your continued support, this blog would not be where it is today.

Wishing you all a wonderful day!

Wednesday, July 24, 2013

Bloating and Distention Non-Prescription Remedies

What Is Bloating?


When your stomach (and/or intestines) becomes filled with gas and is not expelled, you will experience distention.  What is "Distention"?  Per MedicineNet.Com it means "The state of being distended, enlarged, swollen from internal pressure".   For me, I can easily expand 4 pant sizes due to bloating after something I ate or drank that my gastroparesis tummy did not like.

What Causes Bloating/Distention?



  • Swallowing Air

  • Constipation

  • Irritable Bowel Syndrome (IBS)

  • Crohn’s Disease

  • Food Allergy (such as milk or gluten products)

  • Bacteria over growth (stomach or intestines)

  • Acid Reflux (GERD)

  • Medications: some diabetic medications, narcotics and diarrhea medications.

  • Aspirin

  • Supplements: Multivitamins, calcium supplements and iron pills.

  • Hormone changes

  • Being bed ridden

  • Carbohydrates (that do not properly digest)


What Foods/Drinks Should I Avoid?



  • Fructose

  • Carbonated beverages - to minimize the air going into your stomach

  • Excess Salty Foods

  • Chocolate

  • Sugarless drinks/food (Sorbitol)

  • Cucumbers

  • Peas

  • Beans and Lentils

  • Radish

  • Broccoli

  • Cauliflower

  • Cabbage

  • Brussels sprouts

  • Onion

  • Garlic


  • Raisins


  • Wheat Bread


Non-Prescription Remedies:



  • Chamomile and Peppermint Tea

  • Cinnamon infused water (boiled and cooled) add Honey and drink

  • Lemon Juice after a meal (do not try this if you have GERD)

  • Turmeric - breaks down proteins

  • Fennel Seed or Tea

  • Clove or Eucalyptus Oil (Tea)

  • Cardamom and Ginger - work by stabilizing stomach acids

  • Carom Seeds - fights stomach bacteria

  • Chew Basil or Mint leaf after a meal

  • Take a walk

  • Take a bath with: lavender, rosemary, thyme and tree oil

  • Yoga

  • Charcoal pills

  • Heat pad on your stomach


My bloating experience:


Image



GP Community Recommends The Following:


I have not tried any of these products and do not receive any personal gain from placing them on my blog.   They are simply listed as suggestions for YOU to look into to help your bloating and distention issues.  As always, read the manufacture label for any allergies you may have and seek doctor or pharmacist consultation to verify any product will effect your current medications.

  • Papaya Enzymens - I recommend you read an article on LiveStrong.Com, "Papaya Enzyme Dosage" (Jul 5, 2011 | By Karyn Maier) for more information.  Click HERE.   They advise that papaya can lead to miscarriages as well as effecting blood sugar levels.   Also "How to Use Papaya Enzymes for Gas" (Feb 12, 2011 | By Maura Banar) Click HERE.  This suggests to contact your doctor first, since Papaya Enzymes can interfere with some medications and lists a few possible side effects.

  • Iberogast -- mix of 9 herbs.  Click HERE for more information by Wikipedia (search 'Iberogast).   Following is a link to Iberogast's web-site:  http://www.iberogast.ca/about-iberogast/

  • Physiologics Zygest - "contains multiple enzymes designed to serve as biological catalysts for the breakdown of macronutrients" per the Physiologics web-site.   Click HERE for more information.



Links:


Sunday, July 21, 2013

Link to: "GES 4 hr Test Results Are In (Personal Story)"


Here is a LINK to my new blog post, "GES 4hr Test Results Are In (Personal Story)".


Since I have links in that blog, it is best that you go directly to the Wordpress blog that I posted it in, but clicking the link above.

Thank you!

Muffin Tins For Leftovers?

Copy from MelissaGPfight.Wordpress.com

7-2013


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Muffin Tins For Leftovers?

Today was a rare day in the way that I was cooking just for me.   Tacos sounded good and I had 1/2 pound of frozen hamburger along with a little cheese and a potato.   “Potato”, you ask?   Yes!  I am a little odd and like a small amount of taco meat on a potato.   I know my stomach does well with potatoes, so YES, a potato and taco meat.

As I am cooking the meat, I know I am only going to eat about 1/3 of a cup.   The next day my tummy will not accept the taco meat, so it sits in the fridge for many days and seems to end up in the trash.

How can I prevent all that money going into the landfill?   I bright bulb came on in my head and the image of a muffin tin glistened.  This is perfect!  I can portion it out based on what I can tolerate.

Cook up the meat as normal, let the leftovers cool, divide it into muffin tins and set it in the freezer.   I keep mine in the freezer for a good 24 hours (to ensure it is solid) and put the taco meat pucks into a freezer bag or storage container.   Next time I want tacos, I simply grab one, heat it and enjoy!


Image

This can be done for all sorts of things in mini, large or regular size muffin tins:

  • Shredded chicken
  • Shredded pork
  • Ground turkey
  • Diced up ham
  • Sloppy Joes
  • Macaroni and Cheese
  • Casseroles
  • Mashed potatoes
  • Soups
  • Anything pureed

The key to doing this is to make sure that the container you put the frozen product into, is of good quality so air does not get into it and therefore, it will last longer in the freezer.

If you are going to do this on a frequent basis, I suggest you spend the money to get the silicone muffin tins.   The food comes out of them so much easier!

 ========================================================================

GES 4Hr Test Results Are In .... (personal story)

In the mail was a letter from my GI Dr (yesterday 7-20-2013) with the results from the 4hr GES she had me do.  I think I have calmed down enough to post this today.  All she wrote was:

Dear Melissa:

Your gastric emptying scan was normal.

If you have any qusetions or concerns, please don't hesitate to call.

Sincerely,

xxx

This told me nothing!  I do not know what my 'normal' times were or anything!!  On Monday, I will order my records from her office and the lab that did the work.  

The other issue I have is now she will not diagnose me with Gastroparesis.  As a reminder, I was diagnosed with GP after the 2 hour GES (gastric emptying scan) from a different GI Dr.  Whom I fired, as I didn't like her.   Now the new GI Dr (whom I liked a lot) will not help me any further.   She felt as if my problems were neurological and not necessary gastroparesis.  For her to confirm GP, she wanted results from the 4hr GES. 

I know something is wrong with me and feel strongly still that I have GP.   It could have been a 'good day' for me when I had the test run.  In addition, what they gave me is of course low-fat and low-fiber, so it too may go quicker in my tummy than what I try to eat.   This does not in any way negate that I have pain 24-7, nausea 24-7, dizzy spells, vomiting, fatigue....

My next big problem is what will SSD (disability) do?   They will see this new result and may determine no benefits because I showed 'improvement'.   At this time, they are only basing their decision on the results of the 3 Drs that they sent me to and I should have a decision in the next few weeks.   But, if I have to dispute (forgot the word) the denial (about 98% of SSD is denied upon the 1st request) then disability will see these results.  I have a good lawyer set up who has handled GP cases, so he will defiantly earn his keep!

ImageIn the mean time my PC Dr has asked for me to see her, as she is getting some of the SSD Dr's notes in  and wants to send me to a neurologist.   This leads me to my last problem.  Financial.  I have no clue how I begin to pay for all of this.  I am not working and already owe about $1,000 for the GI Dr office visit of 11 minutes and the 4hr GES.   Then the PC Dr and Neuro Dr will all add up, besides any tests they may want to do.   I simply do not know how all of you GPer's do this!

I want to know what is wrong with me and to find the help that I need.... so I keep shelling out money to continue my needle in a haystack adventure!  

My chin is up and I am plugging along, the best that I can do, like the rest of us.   Thank you all for your encouraging words the other day.  I hold you all in my thoughts as I continue to help spread awareness to find a cure/treatment for us all!

HERE is my blog on my 4hr GES vs my 2hr GES (the differences).

HERE is my blog on my last GI Dr visit (6 week wait for an 11 min appointment)

Muffin Tins For Leftovers?

Today was a rare day in the way that I was cooking just for me.   Tacos sounded good and I had 1/2 pound of frozen hamburger along with a little cheese and a potato.   "Potato", you ask?   Yes!  I am a little odd and like a small amount of taco meat on a potato.   I know my stomach does well with potatoes, so YES, a potato and taco meat.

As I am cooking the meat, I know I am only going to eat about 1/3 of a cup.   The next day my tummy will not accept the taco meat, so it sits in the fridge for many days and seems to end up in the trash. 

How can I prevent all that money going into the landfill?   I bright bulb came on in my head and the image of a muffin tin glistened.  This is perfect!  I can portion it out based on what I can tolerate. 

Cook up the meat as normal, let the leftovers cool, divide it into muffin tins and set it in the freezer.   I keep mine in the freezer for a good 24 hours (to ensure it is solid) and put the taco meat pucks into a freezer bag or storage container.   Next time I want tacos, I simply grab one, heat it and enjoy! 

 

This can be done for all sorts of things in mini, large or regular size muffin tins:

Image

  • Shredded chicken
  • Shredded pork
  • Ground turkey
  • Diced up ham
  • Sloppy Joes
  • Macaroni and Cheese
  • Casseroles
  • Mashed potatoes
  • Soups
  • Anything pureed

 

The key to doing this is to make sure that the container you put the frozen product into, is of good quality so air does not get into it and therefore, it will last longer in the freezer. 

 

If you are going to do this on a frequent basis, I suggest you spend the money to get the silicone muffin tins.   The food comes out of them so much easier!

 

 

Thursday, July 18, 2013

New Facebook Page: Tats For Gastroparesis



My new Facebook Page is up:  https://www.facebook.com/TatsForGastroparesis

Feel free to post your Awareness Tats or inspirational tats.   I had seen so many this Spring, I felt a page to hold them all would be great for all of those that are considering a new tat and just to show off your great ink!     Later I hope to hold a 'vote' and the winner will get a small prize.  

Any abuse or inappropriate posts will be deleted and you will be banned/reported.  I have a Zero Tolerance policy.


New Facebook Page "Tats For Gastroparesis"

Image

 

My new Facebook Page is up: 

https://www.facebook.com/TatsForGastroparesis

 


Feel free to post your Awareness Tats or inspirational tats.   I had seen so many this Spring, I felt a page to hold them all would be great for all of those that are considering a new tat and just to show off your great ink!     Later I hope to hold a 'vote' and the winner will get a small prize.  

 

Any abuse or inappropriate posts will be deleted and you will be banned/reported.  I have a Zero Tolerance policy.

 

 

Wednesday, July 17, 2013

My 4hr GES (Gastric Emptying Study) Experience


Here is the short story of my 4hr GES (Gastric Emptying Study) that was done today.  I have pictures of before and after the test, since my tummy did not respond well.   I call it my GP Baby.  I'm in so much pain from the bloating, it's crazy.  Hope to get relief for the weekend.

http://melissagpfight.wordpress.com/2013/07/17/my-4-hr-ges-gastric-emptying-study/

My 4 Hr GES (Gastric Emptying Study)

After already having a 2 Hr GES about 14 months ago, I thought I was well prepared going into today as far as knowing what to expect.  Man, was I wrong!   The 4 hour version was nothing close to the 2 hr GES.

2 Hr GES (for me - others have reported differences) :

  • Egg Salad Sandwich and water.
  • Lay down for 2 full hours as the machine above you takes pics every couple of minutes.

 

The 4 Hr GES for me (apparently others have had slightly different experiences) went like this:

  • I got to eat Egg Beaters (about 1 full measuring cup), 2 pieces of toast with strawberry jelly and water.
  • I was told to make sure I eat the eggs, drink the water and eat as much toast with jelly as I could.  They told me the sugar in the jelly was a key component to digestion.
  • I had only 10 minutes to eat it all.   Since I eat chew everything until it is almost nothing (this helps reduce the pain when I eat real food), I knew I had to eat like I did pre-GP and pray I don't get sick.   I managed to swallow the eggs with the water and eat 1 piece of toast in the 10 minutes.  Yuck!  Is all I have to say about that.
  • The bell rang for 10 minutes (they checked on me at 5 min to let me know), and I was escorted to the other room to stand in front of a machine, not moving, for 2 full minutes.  Being dizzy does not help achieve this goal very easily.
  • At the end of the 2 minutes and the tech is happy with the picture(s), I was taken to the main waiting room.   They would call me back in 30 min to do another session of the 2 minute photo-shoot. 
  • We continued this process for 2 hours - or 4 picture sessions. 
  • Once the results from the last test was in, the tech looked them over and said that I would need to come back in 2 hours and have one last image taken.   That my stomach was slow enough (couldn't tell me how slow) to warrant me to continue with the GES test.
  • I could go where ever I wanted, do what ever I wanted, as long as I was back in 2 hours and did not eat or drink anything.
  • When I got back he had to note if I got sick in any manner, which I did not (pat on the back)!  It was a nice day, so I hung out by my car and played on my phone.   The time was too short to drive home and I was too dizzy to actually walk around a mall.
  • The last of the pictures were taken and I was on my marry way to wait 1 week for the results from the GI Dr's office.

 

I can say that I am very happy with this test.  I would do the 4 hour GES in a heartbeat over the 2 hour (laying down for that long made my legs and butt go numb).   The waiting room sucked to be in for that long, but was much better than counting tiles.   The place I had the GES done does not have clocks or tvs.   I hear from other people that some got to watch a movie!   All I got to watch was the blurry computer monitor screen with my digestive track.   This was much better.

The only bad part of today is that I now have a GP Baby and it is killing me!  The pain from the bloating is crazy and the heat is not helping me stay comfortable.   Below is a pic of my normal tummy day (taken a few months back -but I'm still the same) and a pic from a few hours ago.

Image

Image

Tuesday, July 16, 2013

4hr GES Study Tomorrow (copy from melissagpfight.wordpress.com)

COPY FROM:

MELISSAGPFIGHT.WORDPRESS.COM


Links will not work in the copy below, unless you view from:
http://melissagpfight.wordpress.com/2013/07/16/4-hr-ges-study-tomorrow-personal-blog/ 


=========================================================================

4 Hr GES Study Tomorrow (personal blog)

If you have not read my last 3 blogs then following is a very brief update:
  • My first GI Dr (who I do not like and no longer see) had me do a 2 hour GES (Gastric Emptying Study) and diagnosed me with Gastroparesis.   My half-time was 240 min (or so) and a ‘normal’ person would have completed the GES in 60-90 minutes.
  • My new GI Dr will NOT diagnose me based on a 2 hour GES.  She wants the full 4 hour study.   She has been in our town for 1 year and has made the clinic agree to do the 4hr test on her patients.  
  • I had written a blog on 2hr vs 4hr, as I do not feel the 2hr is good enough to diagnose with GP.   Link is HERE.   But don’t really want to have to pay for this test ‘again’.  It was several thousands of dollars the first time around.   Plus, digesting that crap so they can take pictures of the food as it goes through my system, can’t be too good for me either!
Tomorrow is the day that I have to do the 4hr GES.  I could hardly get down the egg salad sandwich last time (plus water), so hard to say how my body will react this time.   Also, my body does not do well (high nausea and pain) if I get up before 9am.  I do not understand WHY this happens, it just does.    My appointment is at 8:30 with 30 min needed to get there.  Guess I will set the alarm for 6:30 so I have plenty of time in the bathroom with my nausea issues.
Image  
I am scared this time around.  It is not because of the unknown of what to expect (what will it be like, where am I going, etc).  Been there – done that.   This time it is “what will the results show?”
I am scared that if denied disability (should know something in the next few weeks) and if this 4hr test comes back with better results than the 2hr test (14 mos ago), that I may not have a leg to stand on for an appeal. 
The other thing that makes me scared is if the test comes back saying I digest at a normal rate or even a slightly longer rate than the average person.   Meaning, “gastroparesis” will not be diagnosed by this doctor.   So what is wrong with me if I don’t have GP?
All these thoughts have been running through my head for the last week now.  Along other family issues (possible relocation) and a few other issues.   The stress of all of this is not good for any person and especially one with a chronic illness.
Crossing my fingers and praying all goes well tomorrow.   It is going to be a restless night that’s for sure!   The heat will not help me get to sleep either (I am slowly not liking summers due to the effect on my body).
Thanks for your continued support and I wish everybody a good tummy day!

=========================================================================

END

4 Hr GES Study Tomorrow (personal blog)

If you have not read my last 3 blogs then following is a very brief update:

  • My first GI Dr (who I do not like and no longer see) had me do a 2 hour GES (Gastric Emptying Study) and diagnosed me with Gastroparesis.   My half-time was 240 min (or so) and a 'normal' person would have completed the GES in 60-90 minutes.
  • My new GI Dr will NOT diagnose me based on a 2 hour GES.  She wants the full 4 hour study.   She has been in our town for 1 year and has made the clinic agree to do the 4hr test on her patients.  
  • I had written a blog on 2hr vs 4hr, as I do not feel the 2hr is good enough to diagnose with GP.   Link is HERE.   But don't really want to have to pay for this test 'again'.  It was several thousands of dollars the first time around.   Plus, digesting that crap so they can take pictures of the food as it goes through my system, can't be too good for me either!

Tomorrow is the day that I have to do the 4hr GES.  I could hardly get down the egg salad sandwich last time (plus water), so hard to say how my body will react this time.   Also, my body does not do well (high nausea and pain) if I get up before 9am.  I do not understand WHY this happens, it just does.    My appointment is at 8:30 with 30 min needed to get there.  Guess I will set the alarm for 6:30 so I have plenty of time in the bathroom with my nausea issues.  

Image  

I am scared this time around.  It is not because of the unknown of what to expect (what will it be like, where am I going, etc).  Been there - done that.   This time it is "what will the results show?" 

I am scared that if denied disability (should know something in the next few weeks) and if this 4hr test comes back with better results than the 2hr test (14 mos ago), that I may not have a leg to stand on for an appeal.   

The other thing that makes me scared is if the test comes back saying I digest at a normal rate or even a slightly longer rate than the average person.   Meaning, "gastroparesis" will not be diagnosed by this doctor.   So what is wrong with me if I don't have GP?

All these thoughts have been running through my head for the last week now.  Along other family issues (possible relocation) and a few other issues.   The stress of all of this is not good for any person and especially one with a chronic illness. 

Crossing my fingers and praying all goes well tomorrow.   It is going to be a restless night that's for sure!   The heat will not help me get to sleep either (I am slowly not liking summers due to the effect on my body). 

Thanks for your continued support and I wish everybody a good tummy day!

 

Friday, July 12, 2013

Info on swimming with feeding tubes

Copy from July 4th Post.   

As a reminder I transfer my Wordpress Blog into Blogger, but am not always 'on top' of doing it right away.

Please follow via e-mail at MelissaGPfight.Wordpress.com for up to date blogs.  

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Info on swimming with feeding tubes

??????????????????????????????????????????????????????????????
This summer some of you may want to swim, but may not know if it is okay with a feeding tube. 
Here is a great article by Oley Foundation on the topic!    Info on swimming with feeding tubes (click
here)http://www.oley.org/Swimming.html

Be safe and have fun this summer!

==========================================================================

How To Find MelissaGPfight

http://melissagpfight.wordpress.com/2013/07/11/how-to-find-melissa-gp-fight/

A Disappointing GI Dr Follow Up (Part 2)

Here is the link to my Wordpress blog on "A Disappointing GI Dr Follow Up (Part 2)".    Since the blog has links to prior Wordpress blogs, I didn't know if a real copy/paste from there to here would work.   Thanks for your effort to click on the link below to read it!

 

http://melissagpfight.wordpress.com/2013/07/11/a-disappointing-gi-dr-follow-up-part-2/

A disappointing GI Dr follow-up (Part-1)

Here is the link to my Wordpress blog on "A Disappointing GI Dr Follow Up (Part 1)".    Since the blog has links to prior Wordpress blogs, I didn't know if a real copy/paste from there to here would work.   Thanks for your effort to click on the link below to read it!

 

http://melissagpfight.wordpress.com/2013/07/11/a-disappointing-gi-dr-follow-up-part-1/

I Was Very Bad – Stupid Emotions

Here is the link to my Wordpress blog on "I was very bad - stupid emotions".    Since the blog has links to prior Wordpress blogs, I didn't know if a real copy/paste from there to here would work.   Thanks for your effort to click on the link below to read it!


http://melissagpfight.wordpress.com/2013/07/11/i-was-very-bad-stupid-emotions/

Thursday, July 11, 2013

I Was Very Bad - Stupid Emotions

After the bad GI Dr visit (Part 1 here -- Part 2 here), I was very upset.  I know how I feel and it feels like gastroparesis, just like my first GI Dr diagnosed me with from the 2 hr GES test.   But now this GI Dr will not diagnose me with it until I have a 4 hr GES test.

Unfortunately what I focused on when I got home was how she didn't think I had GP, but rather something neurological.

I was so tired when I got home, I watched my couple of favorite tv shows and then took a nap.  2 hours later I woke, still upset and now needing something to eat.  Since I didn't feel good (GP wise), I wasn't hungry but hadn't ate anything all day.   So, what do I reach for?  A smoothie?  Soup?  No and No.

ImageMy mind went to, 'what can I eat that is high in fat and high in fiber?', 'if I don't have gp then it will not matter what I eat'.   Not a good thought.   I wished my husband was home and he could have stopped this self destruct.   I made something very bad for me and in a very large amount.  The amount that I would have eaten, pre-gp.   Then looked at it one last time before I dove in!  I never had a second thought.  When tears ran down my face, I should have stopped.  It wasn't from the physical pain, but the emotional pain of that stupid GI Dr meeting.

The thoughts of how I held her so high on a pedestal and how hurt I was with today.   How could any Dr do that?  But I knew the answer to that.  My 1st GI Dr was that way, yet I still think she was a little worse.

For some reason the meal did not hit me as bad as I expected.  I really didn't have any other heightened issues from eating that.   Then that part worried me.  Maybe I don't have GP, since I didn't have the reaction I was expecting.   Then the past came flooding in.  Why was I not throwing up as much as I was when I was first diagnosed.  Am I getting better?  I didn't think so.  None of my family thinks so.  So, what is wrong with me?

I was on the fence to decide if I wanted the GES test done, as it could effect my disability claim down the road.  But with all of these thoughts in my head, I have given in and will go do the test.

In now way am I recommending that you go off of your GP 'diet' and have a food-frenzy as I did.  That action could land you in ER.   I am sorry that I did it. Yet happy for it, as it helped me decide what I need to do next in my medical journey.

A Disappointing GI Dr Follow Up (Part 2)

This is continued from Part 1 (Click Here ).    In Part 1 I told you how it took me a little over 3 weeks to wait 10 weeks for the actual appointment with my GI Doc.

The long wait was filled with my 'normal' symptoms.  Nothing better, nothing worse.  And finally the appointment day was here!  I was excited as I had not seen her since October 2012, but we spoke on the phone several times and even during her maternity leave.  She was new to the profession, but on top of gastroparesis, which is why we got along so great.

I was asked to come in at 8:45am for a 9am appointment, just to get the new computer system up to date with my info.   That was fine, my insurance had changed as well as my address since my last true visit.   It was a bad GP morning (as most mornings that I have to get out of bed before 9am).   A few stops to the bathroom and I made the 30 min trip by car to see her, but I made it and on time!

The check in did take that long.  I looked at my phone when I sat down and it was straight up 9am.  I figured I would be called back soon and didn't get too settled.  My mistake.  At 9:20am I was getting a little anxious and updated my FB Status (that's how I know what time it was).  A few seconds later, the nurse came to take me back.  Thank goodness.

ImageThe nurse part was the same as always with questions and stats.  Took just a few minutes, as not much had changed with my history.  Like normal she said the Dr would be right in.  I hoped so, we were already past my appointment time and I had brought a 1 page print out of topics I wanted to address.

I got down off the exam table to get my sheet of questions and pen, glancing at my phone for a time.   Isn't it convenient that they never put a clock in the room?!   Well we were up to 9:35a and still no Dr.  About a min or 2 later, she came in.  Thank goodness!  I am so ready to get help and catch up with her and her new child!

Chit Chat was not going to happen.  She was in a horrid mood!  She founded when I said I was not feeling any better.  We went over (very briefly) what I tried to eat and what my 'issues' were.  I kept getting cut off when she was asking me things.  I would continue to talk and she would go back to her computer.  Grrr.  I was not getting any where.  She had a problem getting my old records up and called a tech to come in.  Then asked if I had been to the Neuro Dr that she told me to (back in Oct), I did not.  That didn't make her happy either.  I said I was planning on it since a Disability Eye Dr told me I was having minor issues.  I then told her I applied, told her I lost my job, lost the unemployment appeal in court.   I never went into detail as I was loosing her focus and as soon as I said the word 'disability' she became very cold.

My other goal to go there was to see if she would be on my side should (when) I need to do the appeal for disability.   A credible GI Dr of mine would help a lot.  Guess that isn't going to happen.

She laid into me saying that she can not diagnose me with gastroparesis based on the 2 hr Gasteric Emptying Study that I had done.   The 2 hr test was done by the 1st GI Dr and based on the results I was diagnosed with GP.  Click here for my blog on that.   But this GI Dr does not believe in any results of a 2 hr GES.  She made that clear the first time I saw here and I agree for the most part.  Our town would not do anything longer than 2hrs and didn't even want to do it for that long.  I was told at 30 min it was okay to go.  But now she has the clinic that does it to agree to do just her patients with the 4 hr test.   And now wants me to do it for this long and go from there (to be diagnosed or not with gastroparesis - by her).

Doing this could hurt my disability, if the GES comes back better or in the even that my delayed emptying is not that delayed at 4 hours.   Then she will not diagnose me with GP and I would have to do a disability appeal based on just my symptoms, as we would not know what the heck is wrong with me at that point.

At 9:46a I was being walked out by her.   I have a print out that tells me so.   It also tells me to get the GES and to take Mirolax to improve my bowel movements.

I set up the GES and have thought long and hard about it.   The 2 hr was bad enough for me.  My butt and legs went to sleep.  I can't imagine 4 hrs, plus if I don't get protein in my every 2 - 3 hours then I become very dizzy and at times have fainted.   But, setting that aside, I want to know what the heck is wrong with me for sure.  If it isn't GP, than it probably is Neuro.   Don't worry, I will never give up the GP Fight!  I still fully believe that is what I have, but I guess GES test will tell me how delayed my tummy is!

The insurance company I have, has no co-pays.  What they do is,  I have to pay out of pocket 100% of the Dr visit and that amount is then deducted from the deductible ($5,000 family).  I looked on my prior bill (different ins co then), but walking in the office was billed at $500.  That was one heck of a 11 min Dr visit!

So that too pissed me off yesterday and I found an email to send a complain to.  Well,  I found 2 places to send it to and I did!   No, I don't expect anything to come of it.  But felt better that I got it off my chest.  When the bill comes you can count on another copy of my email going inside of it!

THE END

A Disappointing GI Dr Follow Up (Part 1)

Back in March 2013 (about the time I got laid off of work), I was not doing well with my gastroparesis.  I wanted to go see my 'new' GI Dr that I hit it off with and thought she was the one for me (story on that here).  But now with facing no insurance issues, I decided I could wait.

Come May 2013, I could not wait much longer.  I still felt the same no matter what I was doing.  By this time I was even going the smoothie with protein powder route to help me, along with soup for lunch.   Yet, even liquids would cause the pain to escalate.  So I gave in and called the GI Dr to set up an appointment.  This was nothing my Primary Care Dr could do anything about.

I called the GI Dr's office gave them the scoop that I needed to see her again as a follow-up.  The lady clicked around in the system and could not find me.  She asked if I had been in anytime after Feb, to which I replied 'no'.   Apparently they had a new computer system and I was not in the new one.  Lovely!   She did more clicking and found me.  Thank goodness, as I didn't know I was lost!!   Then she told me that she could not set up an appointment until I go back to my PC (Primary Care) Dr and get a new referral.  Say what?!   I was put on hold so she could figure it out.  Then comes back to tell me the same thing and there is nothing they can do.  I begged, telling her I never had a referral to go there in the first place.  Another moment on 'hold', to which I think she was just venting about me to a co-worker.  I didn't get anywhere and still didn't know if I really needed the referral.

ImageNext I called my PC to get the referral.  Left a message, as always with that place, but explained fully what I needed.  About 4 hrs goes by and I get a call back from the nurse telling me they got my request and have sent it off to the proper department to issue.  That it should take about a week.  Really?!  

I waited the week (work week) and nothing happened.  If I recall there was a holiday or something during the next week, so I didn't bother with the follow up then either.  As time is passing I am not getting any better, nor worse.

By the end of the 2nd week I called my PC Dr office to see if they could tell me what was happening with the referral.   A gal checked on it and told me that she sees it in the computer but it has not processed with my insurance company yet.  I told her that I have a new insurance company, gave her the info and she told me to check back in a week.  Again?!

Now we are to the end of week 3 and I called my PC Dr office again for the referral check-up.  Same crap that it hasn't been processed with my insurance yet.  This gal I don't think even looked at the computer.  To give it another week.  Yeah right!!

No really pissed I called my new insurance company.  Which is never a good idea, but I played nice.  They looked me up.  Again that was an issue at first, since I have to call the corporation that my husband works for, as they have a dedicated line for the insurance.  And since I was calling, it created havoc.  What doesn't?!   Finally she got the records up and told me that I do not need a referral, so that was probably the 'hold up'.  WTF?!   I was livid, but would not take it out on her.  I had worked in Customer Service for many years and hatted to get yelled at when it was not my fault.  I thanked her and hung up.

Now I am 'hot to trot' as the saying goes....dialing my GI Dr office.  We are into week 4 of this run around and I am beyond pissed, sick and just plain ol' hurt!   The voice was different on the other end and I was counting my lucky stars.  I told her who I was and she eventually found me.  Then I proceeded to tell her about the referral crap and how I just wanted to see the GI Dr again.   To my surprise she said, 'that's not a problem.  let me do a couple things in the computer and we can get you scheduled'.   At that point my mouth was wide open.  Was it that easy 4 weeks ago?  Should I just have called back the next day to have this done?  I was kicking myself, but now I know!   It really was that easy and she was onto the scheduling calendar.

We were now at the end of May, all of June was booked, plus the Doc was going on vacation, so the first opportunity was July 24th.  Say what?!?!   I took it, I had no choice.  But I also asked if they had a waiting list and they do.  She put me on it.  I rolled my eyes, as I have been through that game with the dentist and never get a call. 

Well, I did get a call and it was for the first available as July 10th.  Fine, 2 weeks early is 2 weeks early.  And when they called me it was 1 week until the July 10th date, so what the heck.

All this to just see a doctor.  I would not have bothered, but if you have ready my first story (click here), you would understand how bad my 1st GI Dr was.   Plus in my town there is only one other option and that group would not even take me, after they reviewed my records.  How sad is that?!

 PART 1 --- The End

How To Find Melissa GP Fight

How To Find Melissa GP Fight

Tuesday, July 9, 2013

Want to help in a Gastroparesis Research Study? It's free, easy and you can be 'anonymous' if you prefer.

Copy from "Opportunities" Tab At:

www.MelissaGPfight.Wordpress.com

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You will find a list of ADVOCACY opportunities and AWARENESS events.

boy looking
  • Gastroparesis Timeline – A fellow GPer has started a research project and is requesting all of us to submit a timeline of our major medical events before the diagnosis of gastroparesis (including if we had our gallbladder removed), what tests the doctors did before the diagnose gastroparesis and what have procedures you have had since (botox, stimulator, etc).   The information she gathers will be in a secure location, but you can be ‘Anonymous’  if you would like.   She is also asking permission to have your information (timeline) sent to a medical group that wants to expand the research project.  Can you imagine?!   Our information may help them to see some sort of connection other groups have not and possibly get us a step closer to better treatment or a cure!   Please take a moment to help this wonderful cause.   It costs you nothing, only your time (unless you have a friend do it for you), you can send it by e-mail and save postage.  It’s that simple.   Click HERE for a link to more information.   On behalf of the Gastroparesis Community, THANK YOU Emily for doing this!

     

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To My Readers -- Thank You -- Again!

To My Readers -- Thank You -- Again!

Over 2,000 views and now in 23 Countries

(1 more since I made this picture last night).

All of your kind words and support help me continue to do what I do

and gives me the strength to do the research I put into the subjects.

There is a lot more to do on the Blog and I will get there!

One day at a time with a Chronic Illness and I know you all understand what that is like.

Hugs to each of you!! 


Wishing you a wonderful day!

Thursday, July 4, 2013

Happy 4th of July (2013)

Some of us will stay inside and hide from the people, parties and food. Others will venture out side of their comfort zone to try some food, knowing they may get sick. Why would they do that? Simply because they want to feel ‘normal’ and fit in.

What ever you decide to do today, I hope you have a good day and enjoy it to the best of your ability!



Info on swimming with feeding tubes

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This summer some of you may want to swim, but may not know if it is okay with a feeding tube. 

Here is a great article by Oley Foundation on the topic!    Info on swimming with feeding tubes (click here)

Be safe and have fun this summer!

Happy 4th of July (2013)

Happy 4th of July (2013)

Some of us will stay inside and hide from the people, parties and food. Others will venture our side of their comfort zone to try some food, knowing they may get sick. Why would they do that? Simply because they want to feel 'normal' and fit in.

To make the event a little better for you, it is best (I know - not as fun) to stay with foods that you know you can tolerate.  As an extra step, I always take a small cooler of 'foods' that I can tolerate, drinks and emergency medications.   This way I know I will be able to have something at the event.   You can either slip out and eat it at your car, or take it with you.  There is no shame in eating what your body will tolerate in front of others.  This is how we survive (and with less side effects).    Lastly, if they ask you to bring a dish, that is your chance to bring a dish that you can eat!

What ever you decide to do today, I hope you have a good day and enjoy it to the best of your ability!

Wednesday, July 3, 2013

Gastroparesis Frogs 'Pain, Nausea, Fatigue'

Here is my latest creation... feel free to pass it along:

http://melissagpfight.wordpress.com/2013/07/02/gastroparesis-pain-nausea-fatigue-frogs-2/

Monday, July 1, 2013

Gastroparesis 'Pain, Nausea & Fatigue' Frogs

Gastroparesis 'Pain, Nausea & Fatigue' Frogs

"Hanging On For The Fight Of Our Life". This is dedicated to all those that suffer from a chronic illness.

Photo is property of Melissa (GP Fight) McElfresh as of it's creation date of July 1, 2013.

Sunday, June 30, 2013

I'm Stronger Than That Reality TV Chick...



Here is a link to my Wordpress blog:  http://melissagpfight.wordpress.com/2013/06/30/im-stronger-than-that-reality-tv-chick/


Here is a copy of the blog 
(in case you don't want to click the link)

I just wanted my first episode on the Discovery Channel called ‘Naked & Afraid’.   Anybody ever watch this?  Well, I only saw it because I was too lazy to change the channel!  Yet it captivated me and I watched the full hour.  Here is the link to the one I saw (it’s free) and what I am going to do a quick blog on.  Just because it was funny thinking about gastroparesis and the chick on the show!
Image
Basically the show is a man and woman that have never met, are dropped into the wilderness to survive for 21 days with only 1 item (of their choosing) each.  Yes, they are naked (of course it is censored).

During the one I watched, they were able to eat a snake about day 7 and then later a turtle.  Well, the turtle made the gal sick for 3 days and the guy was upset that he had to: hunt, keep the fire going and tend to her.  She had food poisoning and puked her guts out.  Any GPer out there know that feeling?!  (insert laugh)  Then became dehydrated.  Hmmm… do we know what that is like?   In the mean time the guy doing all this extra ‘work’ became physically drained and started to be a real a** to her and then would shrug it off saying he was just ‘tired’.   Again… do we know that feeling?! 

I also got to see the time elapse and them both shed the pounds off their bodies.   Luckily with my GP I only lost 15 pounds, but know some of you have lost much more and yet others go the other direction.

I know I could not do the elements that they were in and the next episode coming on is set in Africa.  The heat alone would kill me off!   So, I am not saying that I could have done better than her.   Maybe in my pre-GP state (haha).

What is my point?  Yes, I know that I could not have taken their spot in the show.   But, I am very proud to know that I over come what they went through (for their 21 days) everyday!  The gal in the show said what a mental toll it takes …. well, yes GP does too!

Keep fighting my wonderful GP Family!  One day we will overcome this!!

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Tuesday, June 25, 2013

Fatigue - Is More Than "GP Brain Fog"






FOLLOWING IS A COPY OF MY BLOG 
From WordPress


What is Fatigue?
“Fatigue is physical and/or mental exhaustion that can be triggered by stress, medication, overwork, or mental and physical illness or disease.”   As stated by The Medical Dictionary.

Symptoms of Fatigue?

Fatigue signs and symptoms may be of a physical, mental or emotional nature. Below is a list of some more possible signs and symptoms:
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  • Bloating
  • Abdominal pain
  • Constipation
  • Diarrhea
  • Nausea
  • Aching or sore muscles
  • Painful lymph nodes
  • Apathy, lack of motivation
  • Chronic (long-term) tiredness
  • Difficulty concentrating
  • Dizziness
  • Hallucinations
  • Hand-to-eye coordination may be impaired
  • Headache
  • Impaired judgment
  • Indecisiveness
  • Irritability
  • Loss of appetite
  • Moodiness
  • Poorer immune system function
  • Short-term memory impairment – there may be problems organizing thoughts and finding the right words to say (brain fog)
  • Sleepiness, drowsiness
  • Slower-than-normal reflexes
  • Some vision problems, such as blurriness
The above was copied from this link.   I never knew that fatigue had so many possible symptoms.  I was naive and only thought about being tired, lack of motivation and headaches. 

Top 9 Medications Causing Fatigue:

  • High Blood Pressure
  • Cholesterol control
  • Proton pump inhibitors  (to treat GERD -Acid Reflux)
  • Tranquilizers
  • Allergy treatment
  • Antidepressants
  • Schizophrenia treatment
  • Antibiotics
  • Water Pills (Diuretics)
Be sure to talk to your doctor with any new medication they may give you, as well as you pharmacist.  Third I would read the informational sheet that comes with medications.  If it does not, then http://www.webmd.com is a wonderful resource.   The above info was taken from from this link.

 

Medical Conditions That Cause Fatigue:

  • Anemia
  • Congestive heart failure
  • Diabetes
  • Hypothyroidism
  • Infection
  • Kidney disease
  • Chronic fatigue syndrome
  • Depression and anxiety
  • Fibromyalgia
Your doctor may run tests to determine what is causing your fatigue, so that they can target the treatment.     This list was taken from “Harvard Health Publications” as it contained all of the medical conditions that I found via various other sites, but in one nice drop down list.

What Else Causes fatigue?

  • Lack of sleep
  • Sleep Apnea
  • Poor nutrition
  • Anemia
  • Depression
  • Hypothyrodism
  • Too much caffeine
  • Urinary Track Infection (UTI)
  • Diabetes
  • Dehydration
  • Heart Desease
  • Food allergies (undiagnosed)
  • Fibromyalgia
More info found here.

How To Treat Fatigue?

First, you need to find out what is the cause.  Only then can you adequately treat fatigue.   The cause could be something simple as dehydration and the fix is to drink more water.  Or it could be your medication and you need to talk to your doctor on what steps to take to help you.  Following are two widely known ‘treatment’ options in the cancer realm:
  • Yoga
  • Ginseng
Always ask your health care provider before you try a new supplement.  Some of them can cause a bad reaction or lower the effectiveness of any medication you may be on, especially Ginseng (along with a few others).

END