Saturday, November 22, 2014

Did you get your 2015 “GP Faces” Calendar?

Did you get your 2015 “GP Faces” Calendar?

As of this post we have 10 calendars left … so you’d better hurry if you still want one!

For sale at The GP Fight Store via www.GPfight.com (Store tab ~ Shop Now).

Each month has a picture of a person with Gastroparesis as well as a couple group photos.   We’ve added a few important GP Advocacy dates too.   There are websites listed throughout the calendar to help others learn about gastroparesis and to connect to support groups and other helpful links.

Calendar is $7 with $1 of that going to Gastroparesis Awareness.  Shipping is extra.   While your in there, check out our popular GP Awareness Cards that are for sale in 2 styles.   With each calendar order G-PACT has given us some brochures, restaurant, venue/bathroom cards to also enclose.

These calendars are the stand up desk ones (about 4″ tall and 8″ long).   Perfect if you want to send it as a gift to a friend or co-worker!

Thank you in advance for helping spread more gastroparesis awareness!
Cover
Cover
January
January

Saturday, October 4, 2014

4 Days Left -- GP Research Fundraiser

Those of you that read our prior post (click HERE) know that we have a fundraiser that will be ending on October 8th, hosted by The GP Fight Store.   The proceeds will be donated to DHA for GP Research.
In 2014 we set a goal of $500 for GP Research on our DHA Page (click HERE) and we have meet that goal!   A very generous person donated enough to round out what we needed after our 2 t-shirt fundraisers we did several months ago.  These are the green shirts with the snail logo and the words: “A Snail Is Faster Than My Gut”, which people have been posting around the internet!
So far into this fundraiser we have raised about $100 and have 4 days left.   Then, 1 last fundraiser to close out 2014!
Thank you to all of those that have participated so far.
Close up of a Gray Polo with the Snail image.   Order yours at The GP Fight Store (GPfight.com)
Close up of a Gray Polo with the Snail image. Order yours at The GP Fight Store (GPfight.com)
Large Tote with the signature green/yellow ribbon.  Available at The GP Fight Store (GPfight.com)
Large Tote with the signature green/yellow ribbon. Available at The GP Fight Store (GPfight.com)

Share this:

Tuesday, September 23, 2014

The GP Fight closes 2014 with 2 last fundraisers for Gastroparesis Research

The GP Fight closes 2014 with 2 last fundraisers for Gastroparesis Research ...



Sept 20 – Oct 8th
Custom Order Hoodies and Totes (Shirts~Polos~Hats Now Too)

Here is the link to our store:
http://www.gpfight.bigcartel.com


There are two sections of the store to shop for the DHA fundraiser:
1) Hoodies and Totes 
2) Custom Shirts, Hats, Polos...

Details (also on the store page): During this time period we will take orders, then around the 9th we will order ALL of the purchases from our vendor and get them out to you once we receive them.

On Facebook?   Join the EVENT Page:
https://www.facebook.com/events/460699980739917/ 




Nov 1 – Nov 15
Think Christmas ~ 10% Donation to DHA
 

10% of your order will be donated for GP Research
Excludes: clearance and custom orders*
 

Shop at: www.GPfight.com (Store Tab – Shop Now)

*Please note our Nov FR will exclude custom orders (totes, hats, polos, hoodies and shirts). If we get enough requests for custom orders we may be able to do another bulk order and then we would be able to honor a 10% donation.

Share us with your family and friends…. who knows maybe you will be getting what is on your GP Fight Store wish list.



For those that don’t want to order, but want to donate to DHA you may do so at anytime via our DHA Page: http://www.dha.org/dw/fundraisers/1049


Hoodies and Totes 1

Custom Orders Polos Hats Shirts Totes

Saturday, July 12, 2014

2nd Snail Shirt Fundraiser For Gastroparesis Research


THE FUNDRAISER WILL END ON JULY 14th

All proceeds go to Gastroparesis Research with Digestive Health Alliance.

Check it out: www.booster.com/SnailGPshirt

This time we have Tank Tops and Universal Shirts.  If you don't want a shirt, but still want to help the GP Community, there is a donation option.


Thank you!

www.MelissaGPfight.com 

Sunday, June 22, 2014

GP Shirt Fundraiser #2

This shirt is available until July 14, 2014. 

The proceeds from the fundraiser go to Gastroparesis Research and Awareness at IFFGD.org / DHA.org.

For more information go to the fundraiser directly at:  www.Booster.com/SnailGPshirt

Or follow along on the Facebook Event Page at:  https://www.facebook.com/events/261052967432875

Thank you!


Saturday, May 31, 2014

A Day In The Life Of Me...

Original Post By www.MelissaGPfight.wordpress.com On May 14, 2014

A Day In The Life Of Me…

Image
You have read my gastroparesis story and struggle (HERE), but for those of you that don’t keep up with my activities via Facebook posts, I wanted to take the opportunity to show you a snap shot of what 2 recent days were like for me:
  • Taking new pictures of my store items to upload them on the Store tab on this website.
  • Editing the pictures for the website and other social media pages.
  • Answering questions for the T-Shirt For Gastroparesis Awareness and Research Fundraiser that runs until the end of May and helping those that are not in the USA obtain a shirt.
  • Packaging up a couple orders to go out (GP Fight Store).  After 1 of them was sealed with postage on it, I sent off the tracking number in an email.   About 2 hours later I have a request to change the order, which luckily I was able to do as it was not dropped off at the Post Office yet.
  • Finishing up a new logo for a GP Sister to use on her new website and snowballing other ideas for her.
  • Helping a long time non-GP with setting up his new business website.
  • Partnering up with a business to swap advertisement info.  This will open up more exposure for GP Awareness!  Go Me :)  More info will be released later.
Then add the 2 days a week I work, going to the store for food, cooking dinner and the many other household chores of life, to finish out a week in my shoes.   This does not begin to reflect punching through nausea to complete the chores, sleeping at odd hours to get things done and making sure I pick the right food (and amount) to consume.  Gastroparesis is truly a juggling act.

I know there are a lot of people out there that can only do about 1/4 of what my normal daily life is like with a chronic illness, that is if they are not running to the ER or are in the hospital.  I count myself very fortunate that I am in a good place with my GP to allow me to do all of this -for all of you who can’t!   However, there are weeks that I am only able to get out of bed and to the couch, but we all have to take the good with the bad.

Just because you might not be able to do things right now doesn’t mean that in the future you still can’t.   A few years ago I didn’t think I would be able to do all of this -maybe in my dreams.  So I will count myself lucky that I can do this, even if it’s not every day.

Image



How Comfortable Are You?

Original Post By www.MelissaGPfight.wordpress.com On May 13, 2014


This blog contains reference to vomiting, so if you are sensitive, please read a different blog post, check out our store or even look at the resource tab.


Here we go… no turning back now…

For years I have read many stories that seem similar and it just hit me that all the following events have the same psychological and physical traits.
What started this was my GP Sister, Emily.  She went to Disney World and of course got sick while in a park.  Did she go back to the hotel?  No.  Did she seek out the medical staff?  No.   She kept walking!

Some nights I don’t go to bed right away, so I need to sneak in and try not to wake my husband when it’s my bed time.  I’m sure most of us have done this at some point or will in the future.  But what amazes me is that I can crawl into bed and my husband in his sound sleep will roll over to hold me… in the same position that we normally start out together in.

So what do these two events have in common?  This is what I was thinking:
  • Repetitive – to be able to vomit in public and keep walking shows that a person has done this a million times and it is just second nature.  Rolling over in bed to hold your spouse several hours after you fell asleep shows that your body knows the other person is there and remembers what the original sleeping position is -through repetition.
  • Secure – you would have to be secure with your self to not let sickness in public bother you, to simply keep going.  In a relationship you build trust (or should -haha) and fall into mutual security (again -or should), that trickles subconsciously to roll your body over in bed.  Okay, that may be a long shot.
This brings me to reading other cases of gastroparesis plagued people vomiting in: stores, on the street, at a school desk, out side a car in traffic and even me on my wedding day.   Each one of us wiped out chin (literally) and continued on with what we were doing.  Yes, I did get married that day!

I invite you to take a look at Emily’s blog (here) and for those of you that are on Facebook, to join Emily’s Stomach (here).   If you want to find me on the different social media sites, click HERE for a list (Emily’s links are there as well as some other GPer’s).

Image
Obviously this wasn’t me.  Mine was in a trash can that my mother was holding for me, while my groom awaited me wondering if the wedding was going to happen.  After a delay -for the bride- I walked down the isle and nothing else mattered.   If I wasn’t sick, I could have enjoyed the reception more, but I was there, we danced and in the end it could have been a lot worse!  15 years with my guy and we are still going strong … so don’t let GP get you down.  You are much stronger than you know, just keep going!

Avoid A Sunburn -- Check Your Medication

Original Post By MelissaGPfight.wordpress.com On May 10, 2014

 

Avoid A Sunbun – Check Your Medication

It’s only May and people are reporting sunburns!   So we feel this is a good time to remind you to check your medications for side effects of sun exposure.  


There are two types of reactions to people who consume sun-sensitizing drugs: 


Photoallergy  – A rash that will appear on the body that is exposed and not exposed to sunlight, up to a few days after being in the sun.

Phototoxicity – Increased sensitivity to sunlight, effecting skin and eyes.  Sunburn can happen within minutes of exposure resulting in the typical red painful burn to the skin as well as blisters.

For more information on photoallergy and phototoxicity we have found that WebMD has summarized it perfectly, click HERE.


For legal reasons we can not tell you if the medication you are taking falls into these classifications.  But we can generalize a few known types of common medications that are typically known to cause these problems, which individuals with gastroparesis may take:
  • NSAIDs (Ibuprofen)
  • Antidepressants
  • Antibiotics
  • Essential Body Oils (popular scents: orange, lemon, lime and ginger)

Even if you go outside for a few minutes, say to go to a store, get the mail, take the trash out or head to an appointment you are still AT RISK for these conditions.  This is something that you can avoid, just by calling your doctor, pharmacist or reading the information that came with your prescription.

 


Image
Here is a cute reminder that we created for you.  Feel free to copy, download and share!

Wednesday, May 7, 2014

Here is your chance to donate towards gastroparesis awareness and research

COPY FROM WWW.MELISSAGPFIGHT.COM  5/3/2014
---------------------------------------

For those of you familiar with The GP Fight Store, you may have seen a snail shirt we have sold there.  Recently we clearanced the shirts and people wanted more.  Due to the complicated matter of guess what sizes to keep in stock, we decided to find a different route to get them to those that wanted them.   Also, people had been emailing the store that they wanted us to carry green shirts so that they could wear them on Gastroparesis Awareness Friday.  You can find the store here: http://www.gpfight.bigcartel.com

We created a Gastroparesis Awareness Fundraiser where you can donate $20 and receive the snail t-shirt OR simply donate any amount.  Either way, the funds we receive at the end of the fundraiser will be used for Gastroparesis Awareness and a portion of the funds will be donated to http://www.IFFGD.org for Gastroparesis Research.  If you make a donation and want your funds to be used for research only, leave a note when you donate and we will be sure to honor your request!   Research is important to us as well!

Following is the link to the fundraiser; which will be run for the month of May.  At the end of may the campaign will close.  About 2 weeks after that, you will receive your shirt(s).  The place that makes the shirts will send them to you, so be sure you have your correct mailing address.

https://www.booster.com/melissagpfight?share=861399157608612



Tuesday, April 22, 2014

9,000 Views At MelissaGPfight.com

9,000 views
With our year of posts at MelissaGPfight.com coming to an end soon, we are flabbergasted at the amount of support we have received.

We will continue to research different topics to bring you articles that you can count on and trust to help give you tips/ideas.

Of course we will also toss in a few personal stories, since you enjoying knowing that you are not alone on your journey.

As more ‘fighters’ send us THEIR stories we will continue to post them as well under the ‘fighters’ tab.

Lastly, when more resources come available we will certainly let you know and add those to the appropriate tab as well.

Sincerely
Melissa “GP Fight” McElfresh
Store Owner of http://www.GPFight.bigcartel.com

Tuesday, April 8, 2014

We Have Reached 100 Posts -- COPY

COPY FROM www.MelissaGPfight.com

=============

http://www.MelissaGPfight.com have posted 100 BLOGS!

100 posts
Looking for a specific topic? We may have what you are looking for.
Type the keyword in our search bar and you may just find it.
As always, thank you for your support.

One Lucky Plane Ride -Part 2 (personal story) COPY

ORIGINAL POST FOUND HERE.

COPY FROM www.MelissaGPfight.com

========

You can find the first part of the story HERE.

airline passangers
Part 1 ended with me in the airport waiting for my next flight.  The 3 hours or so seemed to pass surprisingly quickly.  With 1 rolling bag in tow and one on my shoulder I waited for my section boarding number to be called.  My plan was to have them take my bag at the gate so I didn’t have to find a place in the luggage area above the seats to put it.  To my dismay the gal assured me there was plenty of room and despite me urging them to do so, she would not take the bag.

Inch by inch I made my way down the isle of the plane, trying not to hit the seated passengers nor loose my grip on the heavy bag.  The rolling bag is wonderful until the isle way is not wide enough for it and you have to carry a bag that contains 2 weeks of clothes, shoes and everything else.   I spy my seat and see that the only place for my bag is 4 rows before my seat.  Holding up the line behind me I try to lift the case with one hand.  Yeah right, what was I thinking?!  Now, I have to put the shoulder bag down (in the isle) and try with two hands to get the bag up and in the cargo area.   Three tries later I got it up there, which was the exact moment the guy under the area I am trying to place the bag into asks if I needed help.   Great timing on his part!  I pick up my shoulder bag and was waiting for the line of people behind me to start clapping.

Few more rows down, I slide into my seat with 2 strangers.  Oddly, when I did the pre-check-in online 24 hours prior, I as able to pick a different seat then what I booked with and nobody was around me at that time.  The flight was maybe 1/2 full 24hrs ago too, but walking down the isle there were only a handful of seats that were empty.   A few people in rows in front of us were able to move to other seats.  But when the gal next to me wanted to move, I got yelled at by the flight attendant for standing up.  We haven’t even moved from the building yet.  I said ‘Can’t you just let this lady move to the open row?’ (directly to our left) and he very sternly told us ‘NO!  The plane is moving, you have to sit down’.  She told me several times that she was sorry for getting me in trouble.  I told her not to worry, I was just happy that I didn’t get kicked off the flight.  I really didn’t want to spend any more time at that airport or worse yet get escorted out of the airport.

The flight was a few hours long and all I wanted to do was close my eyes, it had been a very long and stressful day.  However, the chatterbox middle-age guy sitting by the window had a different plan.  Why, O, Why?!  Even the gal next to me, in the middle seat was trying to ignore him and take a nap.  He quieted down when we were moving down the runway and then the group of 5 kids filling the row behind us from window to window started in.  Asking the hundred and one questions they always do, from ‘how many planes crash in a year?’ to ‘what time will we get there?’.  The adults are yelling from across the isle.  The one little girl was getting very white and her mom asked if she was going to throw up.  Her reply was ‘no, I’m ok’.  I’ve used this line way too many times and was waiting to be covered in vomit (since I’m sitting in front of her).  Thankfully, her tummy settled down once the plane leveled off after takeoff.  And so did mine!

I tried to snuggle in the seat that is stabbing me in the back and will not recline, to get a little peace.  Still the kids had a different idea, between their games and kicking the seat I didn’t rest much.   When drinks and snacks were offered, I pulled out my PB&J and excessively costly water I got in the vending machine at the airport.  This and one more nausea pill got me through the flight.

At the end of the flight a nice person helped me get my bag down and waited for me to get everything together.  Loosing energy quickly I think I hit most of the seats with my bags as I got off the flight.  The flight attendant was even laughing a little.  But I was just happy to get off the plane to put it down and wheel my way to find my family, despite the feeling of fainting.  Being hot, tired and lack of nutrition does that to me.  Then the excitement hit when I found my family and the GP seemed to disappear for a moment!  It had been a long 6 months since I saw them.  We made our way through the very large (to me) Vegas Airport.  For the record, those people movers still make me dizzy!

It’s hard to find the right balance when it comes to eating and traveling.  Each person has to find what will work best for them.  But remember, going without food and liquid for your travel day is still not the best idea, in the end.   At least it wasn’t when I tried that in the past.

I am happy that I threw caution to the wind and tried to fly again, as this time it all worked out.  Hopefully you will get the nerve to do the same, it is simply amazing what we can will out bodies to do at times.  Just keep good thoughts and it may just work out.   Wishing all of you reading this a wonderful summer!

THE END

One Lucky Plane Ride -Part 1 (personal story) COPY

ORIGINAL POST FOUND HERE

COPY FROM www.MelissaGPfight.com

====================

Vegas was our travel destination once we found out that was where the rest of my family was headed for 2 weeks! For 8 weeks I planned the details to drive down, where to stay along our route down, the places we (okay my GP Tummy) could eat at and all the rest that goes into this.

We got down to 4 weeks out and my husband finds out that he can not go, due to work obligations! This means that he is no longer driving down, so I can ride along as passenger. It is a 2 day drive from out starting point, so despite my best desires, I would not drive by myself through the desert. In the end I would have to find a flight.

Living in a large town, this would not be a problem for most. We are not ‘most’ people. The town we live in has 2 grocery stores that close at 10pm and you can count the number of restaurants (I use that term loosely) on one hand. However, we do have an airport….. um crop dust runway, maybe is a better picture.

I found that I could get a flight out of town, to the large town next to us (4 hr drive) for a price that could not beet driving. Yet, my husband wanted to drive me. And the more I researched the plane I would be on, the more it seemed like a crop duster. From what I read there would be about 8 seats to the plane and luggage was obviously limited. For a 2 week trip, I really would like to take some clothes with me and maybe a change of shoes! So okay, I was game for the ride to the next town on the day that I had to fly out.

Thinking I had my plan, again, the hubby put a kink in it. He didn’t think he could take me. Really?! This was feeling like the movie Groundhog Day.  To break the curse, I booked my 2 flights and that was the end of that! Or was it?

The week of me needing to go to the airport I kept asking if he would be able to get away from work to take me to the airport or if I should schedule a time with the only cab company we have in town. You guessed it! He would take me. I had 10 min before I needed to be at the airport and I called his phone for the 2nd time with no answer. I called the cab company and they would not be able to get to me in time. Ugg!! I do have to give my husband credit, he works very hard as a Store Manager and it is very hard for me to ever get away. He does have a heart of gold and honestly tried his best with all of this.

The hubby showed up in time for me to make it to the airport before the plane was scheduled to leave.  The now frantic me made it to the desk to check in (no pre-checkin via web) and through TSA. Luckily this time I didn’t have smoothy stuff or any other liquids. Just a lot of protein bars, tea bags and a nut butter sandwich. We didn’t have much time to do our goodbys, but that was probably for the best.

I went by what the web-site said and had my gate check-in bag and my personal bag for a carry on. I was advised after TSA that I could not keep my personal item. Which of course has my purse in it, laptop, camera and other fragile stuff besides the Holy Grail … nausea meds!  I was not happy, but looking at the said crop duster outside, I understood. She said I could have a very small lap item, like a purse. So, she let me dig mine out and I quickly filled it with my nausea pills, mints and a protein bar along with my wallet. I could live with that, crossing my fingers that the laptop does not break.

The lobby felt like a very small dentist office, with all 7 of us and 2 little kids, very anxious to get this over with.  At this point I am not sure if a root canal would be better. The still not so happy gal counted ‘all’ of us and informed us there are only 6 seats! WTH? I NEED to get to the next town. She looked at the 2 with the kids, plus a young daughter, 1 on crutches and a young couple. Looking back at me, she said that it looks like I would need to be the co-pilot. I thought she was joking and played along, despite her not finding humor in this at all.  She opened the door and I was asked to go first as the co-pilot. Haha, I thought. Having to duck my head to get in, hunched over I could still count there were only 6 seats, no bathroom and a seat next to the pilot that was empty.  Really?!  Was this happening?  Or did I take too much medication the prior night and this is a very bad dream?!  To top it off, I could not take my purse that I held up the flight for, so I could give up the larger ‘personal item’.  Even to beg and plead did not work.  Bu I was able to grab a handful of mints for my pocket and stole a vomit bag as I made my way to the co-pilot seat.
Image
As I sat looking out the front of the plane (haha .. it has wings and an engine, guess it’s an airplane) I thought about yelling and having security haul me away.  I decided to be good. If the kid in the back can do this, then I can over-come gastroparesis for 2 hours and do this. Right?!  I moved my eyes around to see peddles on the floor as well as a steering wheel very close to me, knobs, lights and dials all over in front of me.  As he moved the peddles and wheel, it moved on my side.  So I could not stretch out, my seat does not go back, this wasn’t looking good.  At this point I still wasn’t sure my nausea treatments and will power could get me through.

Sporting SeaBands on my wrists, a pill of Nauzene, mints in my pocket and a vomit bag in my lap, I was ready to do … something.

The pilot was nice, I didn’t chat at all, figured he needs to fly the plane and not worry about me. For 2 hours I sat in one spot. No place to stretch the feet or twist or turn. Sun glaring in my eyes, I wished I had my sunglasses. The take off was a little harsh, but the rest of the flight was very beautiful. Most of the way we could see the ground, all snow covered. The last ¼ of the flight was clouds above and below us. For awhile we were in them as we were needed to descend. Sure glad he knew where he was going, since the GPS system was not helping me much. I can only assume this is when you just need ‘faith’. We dropped below and I could see the runway. Wishing I could use the break peddle, like a car, as we got closer. I grabbed the arm rest instead. Too many flights I have been on the touchdown was hard and I would hit my head. This was the best pilot ever! I wanted to kiss and hug him. I didn’t go into the windshield, I didn’t hit my head and if I wasn’t sitting in the seat next to him, I would not have known landed except the sound of the tires on the pavement.

Now I am at the airport waiting for the next flight. 1 protein bar down and a $3 bottle of water so I can take my next pill, 3 hours of mindless rest, then I should be ampted for the next one. This time there will be 28 rows and a family waiting for me.

THIS WAS ONE LUCKY FLIGHT !!

(that I made it on board as well as my GP nausea did okay)

TO BE CONTINUED….

Sunday, March 30, 2014

Tips On Surviving A Car Trip With Gastroparesis (COPY)

COPY from www.MelissaGPfight.com


Tips On Surviving A Car Trip With Gastroparesis



Each person with gastroparesis can have different symptoms, will react to medications differently and not all natural remedies will work.  For these “Tips For Traveling With Gastroparesis” will be based on what I do.   Keep in mind that I do not have a feeding tube and not too many other medical issues that I need to worry about when traveling.  This list is simply to give you an idea of what a person with a chronic illness must take into consideration when planning a trip.


Around Town Outing

No matter where I go, I always have a small bag in my car with the following items:
  • LifeSaver Mints – helps with nausea (click HERE for other nausea remedies).
  • Protein Bars – the Balance Bar brand seems to be best on my stomach.  I eat 1 when I start to feel dizzy (lack of protein is my trigger).
  • Single serve size of peanut butter – again for the protein to ward off the dizzy spell.
  • Vomit Bag – just in case
  • Always know where you are going, so that you know where restrooms are along your route.
  • A change of clothes – just in case
  • A liquid item – for me I make a cup of hot mint tea and put it in my travel cup.  Also have bottled water.
  • Medications – nausea, headache, allergies and whatever else I can think of.
  • End of a roll of toilet paper or tissues – those of you that have gone into a restroom with no TP will understand!
  • Know which restaurants have ‘food’ that you can consume, in case your with friends or family that want to stop for a bite to eat.  Most restaurants have their menu online, so it is easy for us to glance at and know if we can eat there or not.  Keep a list with you or in your phone.

Planning A Trip

Even if it is going to be a short trip (or overnight) try to give yourself plenty of time to plan, prepare (mentally and physically) and pack.   The short trips can be just as hard on us as a long trip.   If by chance there is a time change involved, that can even be harder on our system to adjust.
  • Keep in mind your health schedule when you plan a trip.  Is there a certain season that you feel better in?  A certain time of the month or week that you typically feel better?
  • If your trip is for fun, then consider the weather of where you want to travel.  Will it be cold during the time you want to go?  If so, how does your body do in the colder weather?  For a lot of us with Gastroparesis either very hot or very cold can easily put us into a flare mode.
Now that you have found where you want to go and when you want to go, now it is time to look how you will get there.
  • Car – typically the best option for most of us, depending on how far you are going.  This method allows you to stop when you want along the way (rest stops for example) and you can take the travel at the pace that is best for you.  Another plus is that you avoid all the TSA hassle (especially if you are feeding tube dependent, take insulin, have a pacer for your stomach or other medical devise.
  • Train/Bus/Boat – I have not traveled by these means, but can only assume that there would be pros and cons to these as well.
  • Air – My least favorite method of travel mostly due to the heightened nausea I experience and dizziness.   I need to plan accordingly and made sure I have a day or two to recover when I arrive, if this is how I travel.
You have picked how you want to arrive to your destination and hopefully have allowed enough time for your body to recover when you get there.  Now it’s time for our suggestions on what to pack and other tips based on travel by car and plane.

Travel By Car

  •  Everything in the “Around Town Outing” goes into our magic bag of goodies.
  • Recently I have found that SeaBands or Pressure Bands work okay if applied 20 min before you get into the car and during the entire trip.  It’s not a cure or 100% fix, but in combination with other nausea remedies, they do seem to help.   They can be found online and most local drug stores will carry them.
  • My other favorite is Nauzene; which is an all natural nausea over-the-counter pill.  This has high amounts of Ginger, so it would not be recommended if you have GERD (acid reflux).  As soon as my tummy has time to digest the pill, it is working for me.  I never thought I would find this small miracle.  Every single other OTC or Rx nausea medication has not worked or had too many side effects.  My suggestion is to keep trying until you find something that works for you.
  • Music!  It is a great distraction, just lay your head back, close your eyes and focus on the music.  This helps when the pain or nausea wave hits.   If you are playing the music on a phone or other devise, make sure you have batteries or a charger.
  • A pillow and/or blanket.  I don’t know about you, but my body temp really seems to go up and down quickly when I am in a car.   Also these are great to have on hand so that you can pull them into your stomach when it is cramping or you are in pain.   The light self-hug seems to help me.
  • I probably don’t have to tell you, but here it goes anyway:  wear shoes you can kick off and loose clothes.  Heck if you are just headed to a hotel, PJs are a good choice.  My go-to is yoga pants and a loose shirt.
  • Heat is always my friend to help reduce pain and nausea, so don’t be afraid to use those Icy Hot Packs (band of your choice) and put one on your side pain or tummy area.  When I can’t have my heat pad, this is the next best thing.   But be sure to pack it!
  • Cooler filled with ice and anything that you are able to ‘eat’ or drink.   Take small amount of anything that you typically snack on during the day.  This will give you a wide selection to choose from and you can pick what you think will be best for your system that day.   NOTE:  after being Dx with GP and needed to travel by car, I thought it was best to not eat.  Eating always made me feel worse, so I thought not eating was my answer.  Turns out that my theory was not very good.  With picking the right food choice, making sure you eat a little less than ‘normal’, really helped me keep the dizzy spells away, headaches and I actually felt better that next day.  The choice is yours!
  • Since you don’t have to deal with weight limits, luggage size or any of that stuff, this is when I like to pack a few extra amount of clothing.  Anything that I typically can wear in public on a bloated day gets packed as well as maybe 1 or 2 of those favorite pieces I have, which can only be worn on a non-bloated day.  For the ladies:  safety pins are a great option if you choose to purchase a skirt that fits the bloated day, so you can ‘keep it on’ when that belly goes down!   Empire waist dresses seem to be a perfect option too.
  • As mentioned before, be sure to know where you are headed to so that you can find some places that you would be able to tolerate food at.
  • Even if you are in a hurry and just want to get there since you may not be feeling very good, I find it is better for me to get out at a rest stop or two.  If you don’t want to walk around (or need the bathroom), then just open the door or window.  The fresh air (if the temp is not too hot or cold out) does our body good.

Picking A Hotel

You may think a room is a room and you just want to book the least expensive option.  However, think about what you NEED and how long you will be there.  Here are some suggestions:
  • A mini fridge is a wonderful thing!  You can try to keep your cooler filled with ice all the time, but that is a pain and you could easily spoil the food in there and none of us want to deal with that, plus gastroparesis.   When I was doing smoothies for my main nutrition, a fridge was a must needed item.  Now it is a place to house the items that my diet requires and gives me the ability to eat when I need.
  • A microwave is a good thing to have as well.   Besides to heat the food you have or make tea, you can heat up your own rice packs if you don’t have a heating pad.  Check out all the ideas that are on Pinterest to make your own heat pad.   Add this to your list to pack too.
  • A coffee pot can be used for more than coffee.  I run just water through it so that I can have my mint or ginger tea, cup of noodle soup or hot cocoa.  With that said, I pack a mug when I travel too.  Those hotel cups are almost worthless.
  • Room Service Please – on those days that I am not able to leave the room, having room service (some menus can be found on the hotel’s web site) is a luxury to me.   And I was not talking about not leaving the room because I am on a honeymoon!!
  • Free Breakfast – if you can tolerate gluten, then most of these continental breakfasts don’t add that much cost to the room verses how much your family would pay if they ate out.  You can even find some that offer muffins, waffles and pancakes (in moderation, can be okay with GP — this is always different for each person).
If you are driving and have the space in the car, you could always bring along: blender, microwave, personal size fridge and a box of dry food that you can tolerate.  We usually get rooms that have a small kitchenette in them (depending on our length of stay), so that I will be able to have some food with the family.  It also saves a lot of money to not got out.  Yet the down side is, if you didn’t bring a maid or cook, you may not want to spend the energy doing this … it is a vacation after all.

We hope you walked away with a few idea and keep these main points in mind:  plan around your expected health flares, take anything that you would use in a given day/week, do your homework to look for places you can eat at along your route, map out potential bathrooms, have all the conveniences you depend on at home in your hotel and be sure to stop along the way for fresh air.


Here are a couple great resources as well:

Tuesday, March 18, 2014

Coupon Code For Shirts At GPfight.bigcartel.com

Copy from MelissaGPfight.com


Shirts at www.GPfight.bigcartel.com
Here is a pic of all 5 shirt designs that are currently available at http://www.GPfight.bigcartel.com From March 17 – 28, 2014 use Coupon Code PATTY05 to receive $5 off any shirt purchase. This brings the shirts down to $10 each (plus shipping USA).   The lowest we have ever had.

The store is offering this great deal to sell off the limited stock they have left in each shirt design, to be able to bring in new designs. Coupon Code is only valid for the stock on hand, so you better hurry!

Birthday 2014

Copy from MelissaGPfight.com

Image
My birthday was on Feb 13th, but I wanted to extend a big hug to all of you for the birthday wishes.  Seemed like something was always getting in the way of me doing this post!  Better late than never?!

Anyway, for those of you that follow me on Facebook, I had a little over 100 Happy Birthday Messages, some with pictures and a few with videos!  I tried my best to respond to each and every one of you.

Image

I never dreamed that I would receive so many, you almost had me in tears.   Several of you sent me cards in the mail which were greatly appreciated as well.  Even one was of my own creation that I sell on my store http://www.GPfight.bigcartel.com (a 12 pack is less than $1 per card).Image

So a belated round of thanks and hugs for thinking of me.  I plan to catch up on my blogging very soon!  But first a couple days this week I will be out of town, then a week home before I go on vacation for 2 weeks.   I will be blogging about that and taking some pics when I am there.  WE can’t have too much GP Awareness!!

Image

Thank you 8,000 times

Image

We’ve reached 8,000 views!  It has been a long time since I have posted and I hope to get back to around May.  Your continued dedication and spreading the blogs that I write to others is greatly appreciated.  Also welcome are the wonderful comments and stories you write to us.  We love to know that you have walked away from an article that we write with having learned a little something new.  That is what we strive for and aim to help not only the Gastroparesis Community, but an person that can benefit from what we do here.  Thank you again!  We hope to not keep you waiting too long for a new post from us.

Sincerely,
The Melissa GP Fight Team

Be sure to visit our store at: http://www.GPfight.bigcartel.com too :)

Why is GREEN the color to represent Gastroparesis / DTP?

BELOW IS A COPY FROM A FACEBOOK POST FROM G-PACT.  WE WOULD HAVE SIMPLY PUT UP A LINK, BUT SOME OF YOU DO NOT HAVE FACEBOOK ACCOUNTS.  THIS QUESTION IS ASKED A LOT AND WE FELT IT WAS BEST TO COPY THE ENTIRE POST.

Why Green and Yellow?

February 9, 2013 at 11:14pm
Most people think that green and yellow became the colors for DTP because green is associated with nausea, vomit, bile, and a greenish appearance when sick. Actually, G-PACT places a stronger meaning behind the colors. We gave them a lot of consideration when we selected them to be the official colors for our use to represent gastroparesis. They represent how we want patients to see the future and what we are all trying to accomplish with hope, strength and growth towards better treatment options. We have seen a lot of growth in this field since our founding in August of 2001, so the green is appropriate. Why?

Green indicates growth. We are growing towards a cure and awareness and research is growing. It’s a color of hope. When things start turning green outside it indicates the end of the cold, long, dark days of winter. The first sign of green plants and grass indicates we are coming out of a time if darkness and coldness and entering a phase of growth and brightness. It is a color that shows brighter and beautiful days are ahead. There is something really encouraging when you see that first blade of green grass or green leaf peaking through after months of brown fields, trees, and no growth.

G-PACT is a grassroots organization meaning that we started with a small handful of patients who were coming out of a period where there was very little knowledge and very little hope towards any kind of understanding or a cure. We knew something needed to be done to provide services to patients to get through the tough times now, and provide hope as we also fight for awareness and research and help bring about greater understanding into this condition. Our initial motto was “Striving towards brighter days of treatment, knowledge, and a cure.” We have grown into a much larger scale, now making an international impact and have provided hope to so many as they try to cope until we do find the cure.

Yellow was also an important color for us.  Our logo is a sun to indicate hope and a brighter future ahead. The sun is a crucial factor that helps the plants grow. It brightens the days and brings with it the nutrients, strength, and oxygen needed to supply the plants with what they need to be able to grow and thrive.

When you wear green, make green things, or do anything with green or yellow for DTP awareness, you are helping things grow and bringing a brighter future and hope to all of us who are suffering from any or all forms of Digestive Tract Paralysis. We are pleased people like the colors we selected and have adopted them into the things they do for DTP awareness. And now you know why! Thanks for helping us see growth in awareness and research by supporting us!

IF G-PACT.ORG WANTS US TO REMOVE THIS POST, WE WILL ACCOMODATE ACCORDINGLY.

Friday, January 31, 2014

Constipation Foods and Triggers

ImageI think most of us have been in a situation like the one pictured above, even if we don't want to talk about it.  Knowing that you have to 'poo' but simply can not do so.  Either you run into the rest room every few minutes or you are the kind that will set up camp in there.  Neither are fun, in my experience.   What can we do about it?   Hopefully the rest of this blog will give you the answer you are looking for!



What Is Constipation?


Constipation is a common but painful condition that occurs when bowel movements become infrequent or difficult. It can be caused by nutritional deficiencies, stress, pregnancy, cancer, depression, and more. The best way to prevent constipation is eating a healthy diet, exercising, and drinking plenty of water.   -- WebMd.com



What Are The Causes?



  • Low Fiber Diet (those that have gastroparesis certainly understand this one)

  • Dehydration

  • Stress

  • Medications

    • Narcotic (pain killers)

    • Chronic use of Ibuprofen and aspirin

    • Antidepressant

    • Antacid

    • Calcium Channel Blocker

    • Diuretic

    • Antihistamine



  • Medical Conditions (a list that MAY contribute)

    • Hypothyroidism

    • Crohn's Disease

    • Ulcerative Colitis

    • Irritable Bowel Syndrome

    • Diabetes

    • Parkinson's



  • Supplements

    • Calcium

    • Iron



  • Long term use of a laxative creates a tolerance level to them.

  • Childbirth


What Foods Cause Constipation?



  • Chocolate

  • Caffeine

  • Black Tea

  • Red Meat

  • Banana - unripened, green

  • Too much dairy (cheese, milk, etc)

  • Eggs

  • High Processed Sugar Foods (cookies, pies, cakes, etc)


Non Prescription Relief Ideas:



  • Probiotics

  • Acupressure

  • Yoga

  • Walking

  • Peppermint Tea (avoid if you have GERD)

  • Castor Oil

  • "Smooth Move" (actual name) of the tea

  • Blackstrap molasses

  • Aloe juice

  • Find more at: everydayroots.com.    We are not affiliated in any way with Everyday Roots, just found them when putting together this blog and they have a lot of ideas that you may benefit from.  Just remember if you have GERD to avoid their suggestion of warm lemon water.  Also, for those of us with Gastroparesis, to avoid suggestions that go against our standard 'low fiber' diet.  Always talk to your doctor and let them know what you are doing.  Some 'at home remedies' can have negative consequences with prescription medications.


Foods to help you 'go' are all high in fiber and are not recommended if you have Gastroparesis (GP).  For those of you that don't have GP, here is the list:



  • Beans and Lentils

  • Avocado

  • Prunes and Figs

  • Fresh Vegetables: Broccoli, cauliflower and carrots

  • Fresh Fruit: Plums, Pears, Apples, Peaches, Papaya, Oranges and Pineapple

  • Berries: raspberries, blackberries, blueberries and strawberries

  • Leafy Greens: Kale, cabbage, spinach

  • Whole Grains (bran cereal)

  • Nuts: Brazil, peanuts, walnuts, almonds, pistachios and pecans

  • Potato skin on

  • Oatmeal

  • Flaxseeds (not the oil form)

  • Brown Rice

  • Olives


Misc


In my personal experience taking Omega 3-6-9 (Fish, Flax & Borage mix) lets me have consistent bowel movements.  If I stop taking the supplement, then I am back to very bad constipation and bloating.    Here is a link to the blog I did on the particular one I take (Click Here).

Here is a blog that a friend of mine wrote and fits in here perfectly!  It's called "Poop - What the Different Colors and Smells Mean".  Click HERE to be directed to Emily's Stomach's blog entry.

We know there more ideas out there, so feel free to add to the list by COMMENTING BELOW. 

Wednesday, January 15, 2014

2014 "What I Want To See Happen"

To read about our "2013 A Year In Review", click HERE.

 

Image

As 2013 ended, progress was being made with my health and advocacy activity.  From gaining momentum on the Facebook Pages to setting up an on-line store (to visit click HERE).

Here are my plans for 2014:

  • Custom Orders and a few more products (or designs) for the on-line store.
  • A fundraiser for GP Research
  • Host another G-Tube pad giveaway
  • More researched topics to add to the blog collection
  • Continue to send inspirational cards in the mail

That's all great, but what about me?  What do I personally want to do in 2014?

  • Fine tune what foods/drinks I need to stick with.
  • Mental Health - yoga or similar to destress
  • Physical well being - try to find a massage place
  • Be more active!  Continue the walking I was doing before winter hit.
  • Go on a trip with my husband.  Reconnecting and adventure are always good things!
  • Start up photography again (outside activity and a destressor .. win, win).
  • Continue crafting cards
  • Most of all .... have fun!!
  • Oh, maybe work on a better bedtime schedule (the over-night shifts throw my whole body off)

If YOU have ideas of what you want to see in the form of blog topics, let me know in the comments below (or via FB) and I will see what I can do.  I did promise ones on: travel tips and what food items you may want to try (GP Friendly).  

Wishing you all a wonderful 2014!

2013 "A Year In Review"

2013 out

2013 was quite a journey for my family with everything from health exploration to self discovery in a new town.  Following are some of the highlights:

  • Went to the DDNC (w/ G-PACT) DC to advocate for GP, but was too sick once I got there to do so.

  • Started this blog site in May 2013

  • Lost my 15yr job due to Gastroparesis

  • Lost my claim for unemployment benefits (too sick to work in the field I had)

  • Sold our home on acreage and most belongings due to financial issues

  • Moved into an apartment that was 1/3 the size of our home

  • Denied SSD benefits (not sick enough)

  • The 3rd and last GI Dr in my area would not take my case

  • I turned down the suggestion to drive 400 miles 1-way to go see if the University could help me.

  • Started over from scratch to find foods that my tummy liked.

  • Moved in the Fall to a small town 3 states away to follow my husband's job transfer.

  • Started elimination of dairy and gluten.  No more smoothies.


Things weren't all bad!  I pulled my self up, dusted my self off and dug my heels into making this a great page for information for all of you to visit as well as the following:

  • Facebook page for gastroparesis and digestive track issues.  As new information becomes available in the community from credible places, I post the link.  From medical advancements, trials, advocacy opportunities, products that help others, jokes, inspiration and anything that may benefit the community.  Lately it has been some product recalls, but that stuff is important too!

  • Teamed up with Patchwork Peddler and did a G-Tube Pad giveaway.

  • Created a Facebook Page for people to show off their tattoos' for inspiration, then had people vote for their 'favorite'.  With the help of Hope's Alley the winner will soon be receiving a wonderful one of a kind bracelet in the colors of their chronic illness awareness campaign.

  • I have a part time job that works the best they can with my GP.

  • In November I started an on-line store (www.gpfight@bigcartel.com) to sell items for GP Awareness at a low cost to the buyer, to enable every person to have the opportunity to purchase something on their potential limited income.  To me it's about awareness and not lining my pocket.

  • I have found the diary free diet to work very well for me and limiting the gluten has helped as well.  Now to just fill in the gaps of what I am missing for fruits and vegetables, I should be all set.   As long as I keep up on my vitamins and supplements, that is!


For me the end of 2013 has been much better -health wise- than the beginning.   The emotional issue of being in this small town away from my friends and family is a whole new subject ;)

See my next blog on how I see 2014 going .... Click HERE.

Saturday, January 4, 2014

Fighters Tab on MelissaGPfight.com

Fighters Tab on MelissaGPfight.com

We have updated our "FIGHTERS" tab located at the top of our page, with 12 great stories of people like you and me.   This is a collection from the past few years of newspaper and internet journal articles (free to the public) that have been gathered together in one place for you to enjoy!  Legally, we can not copy the entire article and post it on our page (with our permission from each journalist), so we did a summary of each article and posted the link to where you can read it. 

These stories are so inspiring that we hope you take a moment to read them.  Maybe on a day in bed when you have nothing else to do?!

May the new 2014 year be kind to you all.