Tuesday, July 16, 2013

4hr GES Study Tomorrow (copy from melissagpfight.wordpress.com)

COPY FROM:

MELISSAGPFIGHT.WORDPRESS.COM


Links will not work in the copy below, unless you view from:
http://melissagpfight.wordpress.com/2013/07/16/4-hr-ges-study-tomorrow-personal-blog/ 


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4 Hr GES Study Tomorrow (personal blog)

If you have not read my last 3 blogs then following is a very brief update:
  • My first GI Dr (who I do not like and no longer see) had me do a 2 hour GES (Gastric Emptying Study) and diagnosed me with Gastroparesis.   My half-time was 240 min (or so) and a ‘normal’ person would have completed the GES in 60-90 minutes.
  • My new GI Dr will NOT diagnose me based on a 2 hour GES.  She wants the full 4 hour study.   She has been in our town for 1 year and has made the clinic agree to do the 4hr test on her patients.  
  • I had written a blog on 2hr vs 4hr, as I do not feel the 2hr is good enough to diagnose with GP.   Link is HERE.   But don’t really want to have to pay for this test ‘again’.  It was several thousands of dollars the first time around.   Plus, digesting that crap so they can take pictures of the food as it goes through my system, can’t be too good for me either!
Tomorrow is the day that I have to do the 4hr GES.  I could hardly get down the egg salad sandwich last time (plus water), so hard to say how my body will react this time.   Also, my body does not do well (high nausea and pain) if I get up before 9am.  I do not understand WHY this happens, it just does.    My appointment is at 8:30 with 30 min needed to get there.  Guess I will set the alarm for 6:30 so I have plenty of time in the bathroom with my nausea issues.
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I am scared this time around.  It is not because of the unknown of what to expect (what will it be like, where am I going, etc).  Been there – done that.   This time it is “what will the results show?”
I am scared that if denied disability (should know something in the next few weeks) and if this 4hr test comes back with better results than the 2hr test (14 mos ago), that I may not have a leg to stand on for an appeal. 
The other thing that makes me scared is if the test comes back saying I digest at a normal rate or even a slightly longer rate than the average person.   Meaning, “gastroparesis” will not be diagnosed by this doctor.   So what is wrong with me if I don’t have GP?
All these thoughts have been running through my head for the last week now.  Along other family issues (possible relocation) and a few other issues.   The stress of all of this is not good for any person and especially one with a chronic illness.
Crossing my fingers and praying all goes well tomorrow.   It is going to be a restless night that’s for sure!   The heat will not help me get to sleep either (I am slowly not liking summers due to the effect on my body).
Thanks for your continued support and I wish everybody a good tummy day!

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